OBSOLETE: X-linked intellectual disability, Martinez type

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Overview

X-linked intellectual disability, Martinez type, is an extremely rare genetic condition that was originally described in a small number of families. It is classified as an X-linked form of intellectual disability, meaning the genetic change responsible is located on the X chromosome. This condition primarily affects males, who typically show intellectual disability of varying severity along with other developmental and physical features. Because this entry has been marked as 'obsolete' in medical databases like Orphanet, it is possible that the condition has been reclassified, merged with another diagnosis, or better understood under a different name as genetic knowledge has advanced. Patients and families who were previously given this diagnosis may now fall under a broader or more specific category of X-linked intellectual disability. The key features historically associated with this condition include intellectual disability, developmental delays, and possibly some distinctive physical features, though detailed clinical descriptions are very limited due to the rarity of reported cases. There is no specific cure, and treatment has traditionally focused on supportive care, educational support, and therapies to help with developmental challenges. Families with this diagnosis should work closely with a clinical geneticist to determine whether updated genetic testing might provide a more precise diagnosis under current classification systems.

Key symptoms:

Intellectual disabilityDelayed speech and language developmentDelayed motor milestones such as sitting and walkingLearning difficultiesBehavioral challengesPossible distinctive facial featuresPoor muscle tone in infancyDifficulty with daily living skills

Inheritance

X-linked recessive

Carried on the X chromosome; typically affects males more than females

Age of Onset

Childhood

Begins in childhood, roughly ages 1 to 12

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for OBSOLETE: X-linked intellectual disability, Martinez type.

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No actively recruiting trials found for OBSOLETE: X-linked intellectual disability, Martinez type at this time.

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No specialists are currently listed for OBSOLETE: X-linked intellectual disability, Martinez type.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to OBSOLETE: X-linked intellectual disability, Martinez type.

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Community

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Has this diagnosis been reclassified under a more current name, and should we pursue updated genetic testing?,What specific genetic tests would you recommend to better understand my child's condition?,What therapies and early intervention services should we start right away?,What is the expected range of intellectual ability, and how can we best support development?,Are there any other medical issues we should screen for related to this condition?,What educational accommodations should we request at school?,Are there any clinical trials or research studies we could participate in?

Common questions about OBSOLETE: X-linked intellectual disability, Martinez type

What is OBSOLETE: X-linked intellectual disability, Martinez type?

X-linked intellectual disability, Martinez type, is an extremely rare genetic condition that was originally described in a small number of families. It is classified as an X-linked form of intellectual disability, meaning the genetic change responsible is located on the X chromosome. This condition primarily affects males, who typically show intellectual disability of varying severity along with other developmental and physical features. Because this entry has been marked as 'obsolete' in medical databases like Orphanet, it is possible that the condition has been reclassified, merged with anot

How is OBSOLETE: X-linked intellectual disability, Martinez type inherited?

OBSOLETE: X-linked intellectual disability, Martinez type follows a x-linked recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does OBSOLETE: X-linked intellectual disability, Martinez type typically begin?

Typical onset of OBSOLETE: X-linked intellectual disability, Martinez type is childhood. Age of onset can vary across affected individuals.