Overview
Postaxial polydactyly of toes, bilateral, refers to a condition where a baby is born with extra toes on both feet, specifically on the outer side of each foot (near the little toe). The term 'postaxial' means the extra digit is on the pinky-toe side, and 'bilateral' means it affects both feet. This Orphanet entry is marked as OBSOLETE, meaning it has been retired as a standalone classification and may now be grouped under broader categories of polydactyly or limb malformations. Polydactyly of the toes is one of the more common congenital limb differences. The extra toe can range from a small, soft nub of tissue to a fully formed toe with bones and joints. In many cases, the condition is an isolated finding, meaning the child is otherwise healthy. However, it can sometimes occur as part of a larger genetic syndrome that affects other parts of the body. Treatment typically involves surgical removal of the extra toe, usually performed in early childhood. The surgery is generally straightforward and outcomes are excellent, allowing normal foot function and shoe-wearing. If the polydactyly is part of a broader syndrome, additional medical care may be needed depending on the other features involved. Genetic counseling is often recommended, especially when there is a family history of extra digits or when other birth differences are present.
Key symptoms:
Extra toe on the outer side of both feetSmall skin tag or fleshy bump near the little toeFully formed extra toe with boneDifficulty fitting into shoesWider-than-normal forefootPossible discomfort when walking if the extra toe is large
Variable
Can be inherited in different ways depending on the underlying gene
Neonatal
Begins at or shortly after birth (first 4 weeks)
Treatments
No FDA-approved treatments are currently listed for OBSOLETE: Postaxial polydactyly of toes, bilateral.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for OBSOLETE: Postaxial polydactyly of toes, bilateral at this time.
New trials open frequently. Follow this disease to get notified.
Specialists
View all specialists →No specialists are currently listed for OBSOLETE: Postaxial polydactyly of toes, bilateral.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to OBSOLETE: Postaxial polydactyly of toes, bilateral.
Community
No community posts yet. Be the first to share your experience with OBSOLETE: Postaxial polydactyly of toes, bilateral.
Start the conversation →Latest news about OBSOLETE: Postaxial polydactyly of toes, bilateral
No recent news articles for OBSOLETE: Postaxial polydactyly of toes, bilateral.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Is my child's extra toes an isolated finding, or could it be part of a genetic syndrome?,Do the extra toes contain bone, and how does that affect the surgical plan?,What is the best age for surgery, and what are the risks?,Should we pursue genetic testing for our child or family members?,What is the chance that future children could also have extra digits?,What will my child's foot function be like after surgery?,Are there any other tests or evaluations my child should have?
Common questions about OBSOLETE: Postaxial polydactyly of toes, bilateral
What is OBSOLETE: Postaxial polydactyly of toes, bilateral?
Postaxial polydactyly of toes, bilateral, refers to a condition where a baby is born with extra toes on both feet, specifically on the outer side of each foot (near the little toe). The term 'postaxial' means the extra digit is on the pinky-toe side, and 'bilateral' means it affects both feet. This Orphanet entry is marked as OBSOLETE, meaning it has been retired as a standalone classification and may now be grouped under broader categories of polydactyly or limb malformations. Polydactyly of the toes is one of the more common congenital limb differences. The extra toe can range from a small,
At what age does OBSOLETE: Postaxial polydactyly of toes, bilateral typically begin?
Typical onset of OBSOLETE: Postaxial polydactyly of toes, bilateral is neonatal. Age of onset can vary across affected individuals.