OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA

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Overview

Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA is a rare genetic condition caused by an extra copy (duplication) of a segment of mitochondrial DNA — the genetic material found inside the tiny energy-producing structures in your cells called mitochondria. This condition is also sometimes referred to as mtDNA duplication syndrome or large-scale mtDNA duplication disorder. Because mitochondria are responsible for producing energy in nearly every cell of the body, a duplication in their DNA can disrupt how well cells make energy, leading to problems in many organs and tissues. The condition most commonly affects organs and tissues that need a lot of energy, such as the brain, muscles, heart, eyes, and ears. Symptoms can vary widely from person to person depending on how many mitochondria carry the duplication and which tissues are affected. Common problems include muscle weakness, poor coordination, vision and hearing loss, heart problems, and developmental delays. There is currently no cure for this condition. Treatment focuses on managing symptoms, supporting affected organ systems, and improving quality of life. A team of specialists is usually needed to provide the best care. This condition is listed as 'obsolete' in some medical databases, meaning it may now be classified under broader mitochondrial disease categories, but the underlying biology and patient experience remain the same.

Also known as:

Key symptoms:

Muscle weakness or poor muscle toneFatigue and low energyProblems with balance and coordinationVision loss or eye movement problems (such as drooping eyelids)Hearing lossHeart muscle disease (cardiomyopathy) or irregular heartbeatDevelopmental delays or intellectual disabilitySeizuresDiabetesKidney problemsDifficulty swallowing or feeding problemsShort stature or poor growthLiver problems

Inheritance

Mitochondrial

Passed from mother to child through the energy-producing parts of the cell

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA.

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No specialists are currently listed for OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA.

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Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA.

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Community

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Which organs are currently affected in my case, and how will we monitor them over time?,What supplements or medications do you recommend, and what is the evidence that they help?,Are there any medications or treatments I should avoid because they could harm my mitochondria?,What signs or symptoms should prompt me to go to the emergency room?,Are there any clinical trials or research studies I might be eligible for?,What does this diagnosis mean for other family members, and should they be tested?,What therapies — such as physical, occupational, or speech therapy — would benefit me most right now?

Common questions about OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA

What is OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA?

Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA is a rare genetic condition caused by an extra copy (duplication) of a segment of mitochondrial DNA — the genetic material found inside the tiny energy-producing structures in your cells called mitochondria. This condition is also sometimes referred to as mtDNA duplication syndrome or large-scale mtDNA duplication disorder. Because mitochondria are responsible for producing energy in nearly every cell of the body, a duplication in their DNA can disrupt how well cells make energy, leading to problems in m

How is OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA inherited?

OBSOLETE: Mitochondrial oxidative phosphorylation disorder due to a duplication of mitochondrial DNA follows a mitochondrial inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.