Overview
Lymphedema tarda is a rare form of primary lymphedema, which means it is caused by a problem with the lymphatic system — the network of vessels that drains excess fluid from body tissues. The word 'tarda' comes from Latin meaning 'late,' because this condition causes swelling that begins in adulthood, typically after age 35. It is now considered an obsolete diagnostic label in modern medical classification, meaning it has largely been replaced by more specific diagnoses as genetic testing has improved. However, some patients may still encounter this term in older medical records or literature. The main feature of lymphedema tarda is persistent swelling, most often in the legs and feet, caused by a buildup of lymph fluid. This happens because the lymphatic vessels are not working properly. Over time, the swelling can become permanent and may affect a person's ability to walk comfortably or perform daily activities. Treatment focuses on managing swelling and preventing complications like skin infections. There is no cure, but compression garments, specialized massage called manual lymphatic drainage, exercise, and careful skin care can help control symptoms and improve quality of life.
Key symptoms:
Swelling in one or both legs, ankles, or feetA feeling of heaviness or tightness in the legsSkin that feels firm or hard over timeReduced flexibility or range of motion in the affected limbRecurring skin infections (cellulitis) in the swollen areaSkin changes such as thickening or a warty texture in advanced casesAching or discomfort in the swollen limbClothes or shoes fitting more tightly than usual
Variable
Can be inherited in different ways depending on the underlying gene
Adult
Begins in adulthood (age 18 or older)
Treatments
No FDA-approved treatments are currently listed for OBSOLETE: Lymphedema tarda.
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Specialists
View all specialists →No specialists are currently listed for OBSOLETE: Lymphedema tarda.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to OBSOLETE: Lymphedema tarda.
Community
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Do I need genetic testing to find out the exact cause of my lymphedema?,What type of compression garment is best for me, and how often should I replace it?,Should I see a certified lymphedema therapist, and how often?,What are the warning signs of a skin infection, and when should I go to the emergency room?,Are there any activities or jobs I should avoid to prevent my swelling from getting worse?,Is there any chance my children could inherit this condition?,Are there any clinical trials or new treatments I should know about?
Common questions about OBSOLETE: Lymphedema tarda
What is OBSOLETE: Lymphedema tarda?
Lymphedema tarda is a rare form of primary lymphedema, which means it is caused by a problem with the lymphatic system — the network of vessels that drains excess fluid from body tissues. The word 'tarda' comes from Latin meaning 'late,' because this condition causes swelling that begins in adulthood, typically after age 35. It is now considered an obsolete diagnostic label in modern medical classification, meaning it has largely been replaced by more specific diagnoses as genetic testing has improved. However, some patients may still encounter this term in older medical records or literature.
At what age does OBSOLETE: Lymphedema tarda typically begin?
Typical onset of OBSOLETE: Lymphedema tarda is adult. Age of onset can vary across affected individuals.