Overview
Central polydactyly of toes, bilateral, is a rare congenital condition where a person is born with extra toes on both feet. Specifically, the extra toes appear in the central part of the foot — meaning the second, third, or fourth toe positions — rather than on the outer edge (pinky toe side) or inner edge (big toe side). This condition is present at birth and is typically noticed right away by parents or medical staff. The term 'OBSOLETE' in the official disease name means that this specific classification code is no longer actively used in current medical databases, and the condition may now be categorized under a broader or updated term for polydactyly (extra fingers or toes). Central polydactyly of the toes is less common than other forms of extra toes and can occur on its own (isolated) or as part of a larger genetic syndrome. The extra toes may be fully formed with bones, joints, and nails, or they may be smaller and less developed (sometimes just soft tissue). Treatment usually involves surgical removal of the extra toes to improve foot function, allow comfortable shoe-wearing, and improve appearance. The surgery is typically performed in early childhood. Most children who undergo surgery have excellent outcomes and go on to walk and run normally. In some cases, physical therapy may be recommended after surgery to help with recovery.
Key symptoms:
Extra toes on both feetExtra toes located in the middle of the foot (second, third, or fourth toe area)Toes may be fully formed or partially developedWider-than-normal forefootDifficulty fitting into shoesPossible webbing between toes near the extra digitPossible abnormal alignment of nearby toesUsually painless at birth
Variable
Can be inherited in different ways depending on the underlying gene
Neonatal
Begins at or shortly after birth (first 4 weeks)
Treatments
No FDA-approved treatments are currently listed for OBSOLETE: Central polydactyly of toes, bilateral.
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Specialists
View all specialists →No specialists are currently listed for OBSOLETE: Central polydactyly of toes, bilateral.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to OBSOLETE: Central polydactyly of toes, bilateral.
Community
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Caregiver Resources
NORD Caregiver Resources
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Mental Health Support
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Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Is my child's extra toes an isolated finding, or could it be part of a genetic syndrome?,Should we pursue genetic testing for our child or family?,What is the best age for surgery, and what does the procedure involve?,What are the risks of surgery, and what outcomes can we expect?,Will my child be able to walk and run normally after surgery?,Is there a chance future children could also have this condition?,Are there any specialists we should see in addition to the surgeon?
Common questions about OBSOLETE: Central polydactyly of toes, bilateral
What is OBSOLETE: Central polydactyly of toes, bilateral?
Central polydactyly of toes, bilateral, is a rare congenital condition where a person is born with extra toes on both feet. Specifically, the extra toes appear in the central part of the foot — meaning the second, third, or fourth toe positions — rather than on the outer edge (pinky toe side) or inner edge (big toe side). This condition is present at birth and is typically noticed right away by parents or medical staff. The term 'OBSOLETE' in the official disease name means that this specific classification code is no longer actively used in current medical databases, and the condition may no
At what age does OBSOLETE: Central polydactyly of toes, bilateral typically begin?
Typical onset of OBSOLETE: Central polydactyly of toes, bilateral is neonatal. Age of onset can vary across affected individuals.