OBSOLETE: Central polydactyly of fingers, unilateral

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:295171
Who is this for?
Show terms as
8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Central polydactyly of fingers (unilateral) is a congenital condition present at birth in which a person has one or more extra fingers in the central part of the hand — typically involving the index, middle, or ring finger area — on only one hand. The term 'central polydactyly' distinguishes this from extra fingers on the thumb side (preaxial polydactyly) or the pinky side (postaxial polydactyly). This specific Orphanet entry (295171) is marked as OBSOLETE, meaning it has been retired or merged into a broader or updated classification of polydactyly. Patients previously classified under this code may now fall under more current categories of central polydactyly or limb malformations. The extra finger(s) may be fully formed with bones, joints, and tendons, or they may be smaller and less developed — sometimes appearing as a small nub of tissue. The condition can affect hand function and grip depending on the size and position of the extra digit. In many cases, the extra finger can be surgically removed during childhood to improve hand function and appearance. Treatment is primarily surgical, and outcomes are generally good, especially when performed by an experienced pediatric hand surgeon. Some cases of central polydactyly are associated with underlying genetic syndromes, so a thorough evaluation by a geneticist may be recommended to rule out other conditions.

Also known as:

Key symptoms:

Extra finger(s) in the central part of the handExtra digit on only one handThe extra finger may be fully formed or underdevelopedPossible difficulty gripping objectsUnusual hand appearancePossible webbing between the extra finger and neighboring fingersReduced hand dexterity on the affected sidePossible stiffness in nearby finger joints

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Neonatal

Begins at or shortly after birth (first 4 weeks)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for OBSOLETE: Central polydactyly of fingers, unilateral.

View clinical trials →

No actively recruiting trials found for OBSOLETE: Central polydactyly of fingers, unilateral at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the OBSOLETE: Central polydactyly of fingers, unilateral community →

No specialists are currently listed for OBSOLETE: Central polydactyly of fingers, unilateral.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to OBSOLETE: Central polydactyly of fingers, unilateral.

Search all travel grants →NORD Financial Assistance ↗

Community

Open OBSOLETE: Central polydactyly of fingers, unilateralForum →

No community posts yet. Be the first to share your experience with OBSOLETE: Central polydactyly of fingers, unilateral.

Start the conversation →

Latest news about OBSOLETE: Central polydactyly of fingers, unilateral

No recent news articles for OBSOLETE: Central polydactyly of fingers, unilateral.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.Does my child's extra finger contain bones and joints, or is it mostly soft tissue?,Is this an isolated finding, or could it be part of a genetic syndrome?,What is the best age for surgery, and what does the surgery involve?,What are the risks of surgery, and what outcomes can we expect for hand function?,Will my child need occupational therapy after surgery?,Should we see a geneticist for further evaluation or genetic testing?,Is there a chance this could occur in future children?

Common questions about OBSOLETE: Central polydactyly of fingers, unilateral

What is OBSOLETE: Central polydactyly of fingers, unilateral?

Central polydactyly of fingers (unilateral) is a congenital condition present at birth in which a person has one or more extra fingers in the central part of the hand — typically involving the index, middle, or ring finger area — on only one hand. The term 'central polydactyly' distinguishes this from extra fingers on the thumb side (preaxial polydactyly) or the pinky side (postaxial polydactyly). This specific Orphanet entry (295171) is marked as OBSOLETE, meaning it has been retired or merged into a broader or updated classification of polydactyly. Patients previously classified under this c

At what age does OBSOLETE: Central polydactyly of fingers, unilateral typically begin?

Typical onset of OBSOLETE: Central polydactyly of fingers, unilateral is neonatal. Age of onset can vary across affected individuals.