OBSOLETE: Brachydactyly of toes, bilateral

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ORPHA:295134
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Overview

Brachydactyly of toes, bilateral, refers to a condition where the toes on both feet are shorter than normal. The term 'brachydactyly' comes from Greek words meaning 'short fingers or toes.' In this case, the bones in one or more toes are unusually short, which makes the affected toes appear stubby or shortened compared to what is typical. This condition can affect one or several toes on each foot. It is important to note that this specific Orphanet entry (295134) is labeled as 'OBSOLETE,' meaning it is no longer considered a standalone diagnosis in current medical classification systems. Instead, brachydactyly of the toes is now typically classified as a feature or symptom that can appear in many different genetic syndromes or as an isolated finding. Isolated bilateral brachydactyly of the toes is often a benign trait that runs in families and may not cause any significant health problems. In most cases, shortened toes do not require treatment unless they cause pain, difficulty with footwear, or problems with walking. When brachydactyly of the toes occurs as part of a broader genetic syndrome, the treatment approach focuses on managing the associated condition as a whole. Evaluation by a geneticist can help determine whether the short toes are an isolated finding or part of a larger pattern of features that might point to a specific diagnosis.

Also known as:

Key symptoms:

Shortened toes on both feetToes that appear stubby or unusually smallOne or more toes shorter than expectedPossible difficulty fitting into standard shoesPossible cosmetic concerns about toe appearance

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Neonatal

Begins at or shortly after birth (first 4 weeks)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for OBSOLETE: Brachydactyly of toes, bilateral.

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No actively recruiting trials found for OBSOLETE: Brachydactyly of toes, bilateral at this time.

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No specialists are currently listed for OBSOLETE: Brachydactyly of toes, bilateral.

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Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to OBSOLETE: Brachydactyly of toes, bilateral.

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Community

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Caregiver Resources

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Questions for your doctor

Bring these to your next appointment

  • Q1.Is my child's toe shortening an isolated finding or could it be part of a genetic syndrome?,Should we get X-rays or genetic testing to learn more?,Will the shortened toes affect my child's ability to walk or be physically active?,Are there any other features or health concerns we should watch for?,Is this condition likely to be inherited by future children?,Do we need to see any other specialists?,Are there any special shoes or supports that might help?

Common questions about OBSOLETE: Brachydactyly of toes, bilateral

What is OBSOLETE: Brachydactyly of toes, bilateral?

Brachydactyly of toes, bilateral, refers to a condition where the toes on both feet are shorter than normal. The term 'brachydactyly' comes from Greek words meaning 'short fingers or toes.' In this case, the bones in one or more toes are unusually short, which makes the affected toes appear stubby or shortened compared to what is typical. This condition can affect one or several toes on each foot. It is important to note that this specific Orphanet entry (295134) is labeled as 'OBSOLETE,' meaning it is no longer considered a standalone diagnosis in current medical classification systems. Inst

At what age does OBSOLETE: Brachydactyly of toes, bilateral typically begin?

Typical onset of OBSOLETE: Brachydactyly of toes, bilateral is neonatal. Age of onset can vary across affected individuals.