Non-syndromic complex polydactyly

Non-syndromic complex polydactyly is a rare condition where a person is born with extra fingers or toes that contain both extra bones and extra soft tissue (such as tendons, nerves, and blood vessels). The word 'complex' means the extra digit is fully or partially formed and connected to the hand or foot in a complicated way — not just a small skin tag. 'Non-syndromic' means the extra digits appear on their own, without other birth defects or health problems as part of a broader syndrome. This condition is present at birth and affects the hands, feet, or both. The extra digit can appear on the inner side (pre-axial, near the thumb or big toe), the outer side (post-axial, near the little finger or pinky toe), or in the middle of the hand or foot (central polydactyly). Treatment usually involves surgery to remove or reshape the extra digit, ideally in early childhood to allow the best possible hand or foot function and development. With proper surgical care, most children go on to have good function and a normal quality of life. The condition does not typically affect intelligence, internal organs, or lifespan.

Bring these to your next appointment

• Q1.What type of polydactyly does my child have, and how complex is the extra digit?,When is the best time to have surgery, and what does the procedure involve?,How many surgeries might my child need, and what are the risks?,Will my child have full use of their hand or foot after treatment?,Should we see a genetic counselor to understand if this could affect future children?,What therapy will my child need after surgery, and for how long?,Are there any signs I should watch for that would mean my child needs to be seen urgently?

Common questions about Non-syndromic complex polydactyly