NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis

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ORPHA:97557N04.1
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8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Dec 1987

Parathar: FDA approved

Diagnostic agent to assist in establishing the diagnosis in patients presenting with clinical and laboratory evidence of hypocalcemia due to either hypoparathyroidism or pseudohypoparathyroidism.

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis.

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No actively recruiting trials found for NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis at this time.

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No specialists are currently listed for NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Parathar

Rhone-Poulenc Rorer Pharmaceuticals, Inc.

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Travel Grants

No travel grants are currently matched to NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis.

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Community

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Latest news about NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis

What treatment and support options exist for NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis?

1 patient support program are currently tracked on UniteRare for NON RARE IN EUROPE: Chronic proteinuria with focal and segmental hyalinosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.