Non-hereditary late-onset primary lymphedema

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ORPHA:90185
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8Treatment centers1Financial resources

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Meige-like disease
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Non-hereditary late-onset primary lymphedema.

View clinical trials →

Clinical Trials

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No actively recruiting trials found for Non-hereditary late-onset primary lymphedema at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Non-hereditary late-onset primary lymphedema community →

Specialists

View all specialists →

No specialists are currently listed for Non-hereditary late-onset primary lymphedema.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Lamzede

Chiesi USA, Inc.

Lamzede Patient Support (Chiesi Patient Support)

Patient Assistance
Manufacturer Program
Accepting applications

Travel Grants

No travel grants are currently matched to Non-hereditary late-onset primary lymphedema.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Non-hereditary late-onset primary lymphedema

No recent news articles for Non-hereditary late-onset primary lymphedema.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Non-hereditary late-onset primary lymphedema

What treatment and support options exist for Non-hereditary late-onset primary lymphedema?

1 patient support program are currently tracked on UniteRare for Non-hereditary late-onset primary lymphedema. See the treatments and support programs sections for copay assistance, eligibility, and contact details.