Non-functioning paraganglioma

Last reviewed

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ORPHA:94080D44.7
Who is this for?
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2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

ParagangliomaHP:0002668Episodic hyperhidrosisHP:0001069Hypertensive retinopathyHP:0001095Recurrent paroxysmal headacheHP:0002331Hypertension associated with pheochromocytomaHP:0002640Paraganglioma of head and neckHP:0002864Elevated urinary norepinephrine levelHP:0003345Positive regitine blocking testHP:0003574Elevated urinary epinephrine levelHP:0003639Pulsatile tinnitusHP:0008629Paroxysmal vertigoHP:0010532Sinus tachycardiaHP:0011703Elevated urinary dopamine levelHP:0011979
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Non-functioning paraganglioma.

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No actively recruiting trials found for Non-functioning paraganglioma at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Non-functioning paraganglioma community →

Specialists

2 foundView all specialists →
DP
Do-Youn Oh, MD, PhD
Specialist
PI on 1 active trial
YP
Yung-Jue Bang, MD, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Non-functioning paraganglioma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Non-functioning paraganglioma

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Non-functioning paraganglioma

Which specialists treat Non-functioning paraganglioma?

2 specialists and care centers treating Non-functioning paraganglioma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.