Neurovascular malformation

Last reviewed

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ORPHA:102006
Who is this for?
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6Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Dec 2023Predictive Value of Neurovascular Coupling in Infants With COngenital Heart Disease

Universitaire Ziekenhuizen KU Leuven

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Neurovascular malformation.

View clinical trials →

No actively recruiting trials found for Neurovascular malformation at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Neurovascular malformation community →

Specialists

6 foundView all specialists →
JG
jean-yves gauvrit
Specialist
PI on 1 active trial
EM
Enrico Novelli, MD
PITTSBURGH, PA
Specialist
PI on 2 active trials
AS
Aida LR Turquetto, PhD student
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Neurovascular malformation.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Neurovascular malformation

Disease timeline:

New recruiting trial: Predictive Value of Neurovascular Coupling in Infants With COngenital Heart Disease

A new clinical trial is recruiting patients for Neurovascular malformation

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Neurovascular malformation

Which specialists treat Neurovascular malformation?

6 specialists and care centers treating Neurovascular malformation are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.