Specialists for Neurofibromatosis type 1

60 physicians and care centers identified from ClinicalTrials.gov trial PIs, PubMed publications, and the NPPES NPI registry.

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Specialists are identified from ClinicalTrials.gov principal investigators, PubMed publications, and the NPI registry, then ranked through an automated scoring pipeline.

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Carlos G Romo, MD
Rare Disease Specialist
Johns Hopkins University
Baltimore, Maryland
QC-verified
Miriam Bornhorst, MD
Rare Disease Specialist
Children's National Health System
Washington D.C., District of Columbia
QC-verified PI×2
Pamela L Wolters, Ph.D.
Rare Disease Specialist
National Cancer Institute (NCI)
Washington D.C., District of Columbia
QC-verified PI×4
Wenbin Li, MD
Rare Disease Specialist
Cancer Hospital Chinese Academy of Medical Sciences
Beijing, Beijing Municipality
1
Shivani Ahlawat, PhD
Rare Disease Specialist
Johns Hopkins University
Baltimore, Maryland
Mary Kay Koenig, MD
Rare Disease Specialist
The University of Texas Medical School at Houston
Houston, Texas
PI×4
Brigitte C Widemann, M.D.
Rare Disease Specialist
National Cancer Institute (NCI)
Bethesda, Maryland
PI×18
Brigitte C. Widemann, MD, M.D
Rare Disease / Clinical Research
National Cancer Institute (NCI)
BETHESDA, MD
PI×6
Christopher Moertel, MD
Rare Disease Specialist
Masonic Cancer Center, University of Minnesota
Minneapolis, Minnesota
PI×2
Jason R Fangusaro
Rare Disease Specialist
Children's Oncology Group
Los Angeles, California
PI×3 3
Prashant Chittiboina, M.D.
Rare Disease Specialist
National Institute of Neurological Disorders and Stroke (NINDS)
Bethesda, Maryland
PI×7
Girish Dhall, MD, MD
Rare Disease / Clinical Research
University of Alabama at Birmingham
BIRMINGHAM, AL
PI×3 1
AeRang Kim, MD, PhD, M.D
Rare Disease / Clinical Research
Children's National Research Institute
BETHESDA, MD
PI×7
Yi Ji, MD, PhD, MSW, LICSW
West China Hospital
PI×4
Vanessa Merker, PhD
Rare Disease Specialist
Massachusetts General Hospital
Boston, Massachusetts
PI×3
Donald Gilbert, MD MS
Rare Disease Specialist
Children's Hospital Medical Center, Cincinnati
Cincinnati, Ohio
PI×1
Scott Plotkin, MD, PhD, M.D
Rare Disease / Clinical Research
Massachusetts General Hospital
BUFFALO, NY
PI×3
Theodore Nicolaides, MD
Rare Disease / Clinical Research
NYU Langone Medical Center
SAN FRANCISCO, CA
PI×2
Douglas R Stewart, M.D.
Rare Disease Specialist
National Cancer Institute (NCI)
Bethesda, Maryland
PI×5
Staci M Peron, Ph.D.
Rare Disease Specialist
National Cancer Institute (NCI)
Bethesda, Maryland
PI×8
Naris Nilubol, M.D., MD
Rare Disease / Clinical Research
National Cancer Institute (NCI)
LONG ISLAND CITY, NY
PI×8
Richard R Anderson, MD
Rare Disease / Clinical Research
Massachusetts General Hospital
PI×4
Hongqi Tian, Ph.D
Rare Disease Specialist
Shanghai Ninth People's Hospital, Shanghai JiaoTong University School of Medicine
Shanghai, Shanghai Municipality
PI×3
Tiago R Marques, MD
Rare Disease / Clinical Research
Pasithea Therapeutics Corp.
PI×2
Qingfeng Li
Rare Disease Specialist
Shanghai Ninth People's Hospital affiliated to Shanghai JiaoTong University
Shanghai
PI×1 572
Eric Wilkinson, MD
Rare Disease / Clinical Research
Huntington Medical Research Institute
PI×2
Ronald Goldwater, MD
Rare Disease / Clinical Research
PAREXEL Early Phase Clinical Unit Baltimore
PI×5
Barbara B Biesecker, CRNP
Rare Disease / Clinical Research
National Human Genome Research Institute (NHGRI)
CLARKS SUMMIT, PA
PI×16
Ana-Maria Vranceanu, PhD, PhD
Rare Disease / Clinical Research
Massachusetts General Hospital
BOSTON, MA
PI×6
Roger J. Packer, MD, MD
Rare Disease / Clinical Research
Children's National Research Institute
WASHINGTON, DC
PI×5
Zhichao Wang
Rare Disease Specialist
Xuanwu Hospital, Capital Medical University
Beijing, Beijing Municipality
908
Alice P. Chen, MD
Rare Disease Specialist
Research Site
Gainesville, Florida
1
Scott Plotkin, MD
Rare Disease Specialist
Massachusetts General Hospital
Los Angeles, California
PI×3
Hans AJ Gelderblom, MD, PhD
Rare Disease Specialist
Leiden University Medical Center
Leiden, South Holland
PI×1
Shuhang wang, PhD
Rare Disease Specialist
Shuhang Wang
Beijing, Beijing Municipality
PI×3
Björn Sigurdsson
Rare Disease Specialist
Skåne University Hospital
Lund
1
Karen Cole-Plourde, BA
Rare Disease Specialist
Childrens of Alabama
Birmingham, Alabama
3
D. Bradley Welling, MD, PhD
Rare Disease Specialist
Massachusetts Eye and Ear
Boston, Massachusetts
Laurie E. Cutting, FNP
Vanderbilt University Special Education Department
WEST GREENWICH, RI
QC-verified PI×1
Andrea M Gross
Rare Disease / Clinical Research
National Cancer Institute
5
Eva Dombi
Rare Disease / Clinical Research
National Cancer Institute
4
Staci Martin
Rare Disease / Clinical Research
National Cancer Institute
4
Allan J Belzberg, M.D
Rare Disease / Clinical Research
Johns Hopkins University School of Medicine
LUTHERVILLE, MD
2
Rosalie E Ferner
Rare Disease / Clinical Research
Guy's Hospital
2
Kaleb Yohay, M.D
Rare Disease / Clinical Research
New York University Grossman School of Medicine
NEW YORK, NY
2
Amedeo A Azizi
Rare Disease / Clinical Research
Medical University of Vienna
2
Andrea Baldwin
Rare Disease / Clinical Research
Clinical Research Directorate (CRD)
2
Anne Dufek
Rare Disease / Clinical Research
National Cancer Institute
2
Joanne Derdak, CRNP
Rare Disease / Clinical Research
National Cancer Institute
BETHESDA, MD
2
David J Venzon
Rare Disease / Clinical Research
National Cancer Institute
2
Malcolm A Smith
Rare Disease / Clinical Research
National Cancer Institute
2
Darren Hargrave
Rare Disease / Clinical Research
University College London Great Ormond Street Institute for Child Health
2
Darren Hargrave, MB Bch
Great Ormond Street Hospital NHS Foundation Trust
QC-verified PI×1
Michael Fisher
Children's Hospital of Philadelphia
QC-verified PI×1
Regina Jakacki, md
COG Phase I Consortium
PITTSBURGH, PA
QC-verified PI×3
Priya Kumthekar, MD
Northwestern University
CHICAGO, IL
QC-verified PI×3
Bruce Korf
The University of Alabama at Birmingham
BIRMINGHAM, AL
QC-verified PI×2
Carlos Romo
Johns Hopkins University
CHULA VISTA, CA
QC-verified PI×1
Catherine Cassiman
Universitaire Ziekenhuizen KU Leuven
QC-verified PI×1
Matthew R Steensma, M.D
Corewell Health West
GRAND RAPIDS, MI
QC-verified PI×1

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