Necrobiosis lipoidica

Last reviewed

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ORPHA:542592L92.1
Who is this for?
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4Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Annular cutaneous lesionHP:0025528Abnormal neutrophil physiologyHP:0011990Indurated noduleHP:0032217GranulomaHP:0032252Abnormal scalp morphologyHP:0001965Abnormal forearm morphologyHP:0002973
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Necrobiosis lipoidica.

View clinical trials →

No actively recruiting trials found for Necrobiosis lipoidica at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Necrobiosis lipoidica community →

Specialists

4 foundView all specialists →
MM
Maya Das, MD
BALTIMORE, MD
Specialist
PI on 1 active trial
AM
Aaron R Mangold
SCOTTSDALE, AZ
Specialist
PI on 2 active trials
SB
Sian Bigora
Specialist
PI on 1 active trial
AK
Alexa Kimball
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Necrobiosis lipoidica.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Necrobiosis lipoidica

No recent news articles for Necrobiosis lipoidica.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Necrobiosis lipoidica

Which specialists treat Necrobiosis lipoidica?

4 specialists and care centers treating Necrobiosis lipoidica are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.