Myeloschisis

Last reviewed

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ORPHA:645398Q06.8
Who is this for?
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2Active trials2Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Sep 2023Cryopreserved Human Umbilical Cord as a Meningeal Patch in Fetoscopic Spina Bifida Repair

The University of Texas Health Science Center, Houston — NA

TrialRECRUITING
Aug 2020Fetoscopic NEOX Cord 1K® Spina Bifida Repair

The University of Texas Health Science Center, Houston — NA

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Myeloschisis.

2 clinical trialsare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

2 recruitingView all trials with filters →
N/A2 trials
Fetoscopic NEOX Cord 1K® Spina Bifida Repair
N/A
Active
PI: Ramesha Papanna, MD, MPH (The University of Texas Health Science Center, Hou) · Sites: Houston, Texas · Age: 1899 yrs
Cryopreserved Human Umbilical Cord as a Meningeal Patch in Fetoscopic Spina Bifida Repair
N/A
Actively Recruiting
PI: Ramesha Papanna, MD, MPH (The University of Texas Health Science Center, Hou) · Sites: Houston, Texas · Age: 1899 yrs

Specialists

2 foundView all specialists →
RM
Ramesha Papanna, MD, MPH
HOUSTON, TX
Specialist
PI on 2 active trials
SD
Stephen Fletcher, DO
Specialist
PI on 1 active trial3 Myeloschisis publications

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Myeloschisis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Myeloschisis

Disease timeline:

New recruiting trial: Autologous Human Umbilical Cord Tissue Patch for Postnatal Closure of Open Neural Tube Defects

A new clinical trial is recruiting patients for Myeloschisis

New recruiting trial: Cryopreserved Human Umbilical Cord as a Meningeal Patch in Fetoscopic Spina Bifida Repair

A new clinical trial is recruiting patients for Myeloschisis

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Myeloschisis

Are there clinical trials for Myeloschisis?

Yes — 2 recruiting clinical trials are currently listed for Myeloschisis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Myeloschisis?

2 specialists and care centers treating Myeloschisis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.