Multisystem Langerhans cell histiocytosis

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ORPHA:687741C96.0
Who is this for?
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Multisystem Langerhans cell histiocytosis.

View clinical trials →

No actively recruiting trials found for Multisystem Langerhans cell histiocytosis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Multisystem Langerhans cell histiocytosis community →

Specialists

15 foundView all specialists →
MM
Milen Minkov
Specialist
2 Multisystem Langerhans cell histiocytosis publications
LC
Lei Cui
FRISCO, TX
Specialist
1 Multisystem Langerhans cell histiocytosis publication
YZ
Yunze Zhao
Specialist
1 Multisystem Langerhans cell histiocytosis publication
ZL
Zhigang Li
FLORAL PARK, NY
Specialist
1 Multisystem Langerhans cell histiocytosis publication
TW
Tianyou Wang
Specialist
1 Multisystem Langerhans cell histiocytosis publication
CC
Cung-Van Cong
Specialist
1 Multisystem Langerhans cell histiocytosis publication
XL
Xiaoyan Li
Specialist
1 Multisystem Langerhans cell histiocytosis publication
XC
Xiaoling Cao
Specialist
1 Multisystem Langerhans cell histiocytosis publication
XZ
Xuan Zhou
Specialist
1 Multisystem Langerhans cell histiocytosis publication
YW
Ying Wang
Specialist
1 Multisystem Langerhans cell histiocytosis publication
GW
Guojie Wang
Specialist
1 Multisystem Langerhans cell histiocytosis publication
JG
Jian Ge
Specialist
1 Multisystem Langerhans cell histiocytosis publication
HM
Honghao Ma
Specialist
1 Multisystem Langerhans cell histiocytosis publication
HL
Hongyun Lian
Specialist
1 Multisystem Langerhans cell histiocytosis publication
WW
Wenqian Wang
TULALIP, WA
Specialist
1 Multisystem Langerhans cell histiocytosis publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Multisystem Langerhans cell histiocytosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Multisystem Langerhans cell histiocytosis

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Multisystem Langerhans cell histiocytosis

Which specialists treat Multisystem Langerhans cell histiocytosis?

15 specialists and care centers treating Multisystem Langerhans cell histiocytosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.