Overview
Mucinous cystadenoma of childhood is a rare, non-cancerous (benign) tumor that grows on or near the ovary. It belongs to a group of cysts called mucinous cystadenomas, which are filled with a thick, jelly-like fluid called mucin. While this type of tumor is more commonly seen in adult women, it can occasionally develop in children and teenagers, which makes it especially rare and sometimes harder to recognize early. The tumor usually grows slowly and does not spread to other parts of the body. Most children with this condition develop a painless or mildly uncomfortable swelling in the lower belly. As the cyst grows larger, it can press on nearby organs, causing belly pain, bloating, or a feeling of fullness. In some cases, the cyst can twist on itself — a serious complication called ovarian torsion — which causes sudden, severe pain and needs emergency treatment. The main treatment is surgery to remove the cyst, and in most cases this is curative. The outlook for children with mucinous cystadenoma is generally very good. With proper surgical care, most children recover fully and go on to live normal, healthy lives. Regular follow-up after surgery is recommended to make sure the cyst does not come back.
Also known as:
Key symptoms:
Swelling or a lump in the lower bellyBelly pain or discomfortFeeling of fullness or bloatingNausea or vomitingDifficulty eating large mealsIncreased belly sizeIrregular or missed periods in older girlsPressure or heaviness in the pelvisSudden severe belly pain if the cyst twists (ovarian torsion)
Sporadic
Usually appears on its own, not inherited from a parent
Childhood
Begins in childhood, roughly ages 1 to 12
Treatments
No FDA-approved treatments are currently listed for Mucinous cystadenoma of childhood.
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Specialists
View all specialists →No specialists are currently listed for Mucinous cystadenoma of childhood.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Mucinous cystadenoma of childhood.
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Caregiver Resources
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Family & Caregiver Grants
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Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.Can you confirm the cyst is definitely benign and not cancerous based on the pathology results?,Was the healthy ovary tissue preserved during surgery, and what does this mean for my child's future fertility?,How often do we need follow-up ultrasounds, and for how long?,What symptoms should prompt us to come back to the emergency room immediately?,Is there any risk of this type of cyst coming back, and what would treatment look like if it did?,Are there any activity restrictions my child should follow during recovery?,Should my child see a pediatric gynecologist for ongoing reproductive health monitoring?
Common questions about Mucinous cystadenoma of childhood
What is Mucinous cystadenoma of childhood?
Mucinous cystadenoma of childhood is a rare, non-cancerous (benign) tumor that grows on or near the ovary. It belongs to a group of cysts called mucinous cystadenomas, which are filled with a thick, jelly-like fluid called mucin. While this type of tumor is more commonly seen in adult women, it can occasionally develop in children and teenagers, which makes it especially rare and sometimes harder to recognize early. The tumor usually grows slowly and does not spread to other parts of the body. Most children with this condition develop a painless or mildly uncomfortable swelling in the lower b
How is Mucinous cystadenoma of childhood inherited?
Mucinous cystadenoma of childhood follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Mucinous cystadenoma of childhood typically begin?
Typical onset of Mucinous cystadenoma of childhood is childhood. Age of onset can vary across affected individuals.