Medial condensing osteitis of the clavicle

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Overview

Medial condensing osteitis of the clavicle (also sometimes called condensing osteitis of the medial clavicle) is a rare, non-cancerous bone condition that affects the inner end of the collarbone — the part closest to the breastbone. In this condition, the bone tissue in that area becomes unusually dense and thickened over time. This happens because the bone is reacting to stress or irritation, causing it to produce extra bone material. It is not an infection, not a tumor, and not caused by injury, though it can sometimes be mistaken for those things. The most common symptom is pain and tenderness at the inner part of the collarbone, which can range from mild to quite bothersome. Some people also notice a visible or felt lump in that area. The condition tends to affect women more often than men, particularly those in their middle adult years, and it often appears during or after pregnancy. Treatment is mainly focused on managing pain and discomfort. Many people improve with rest, anti-inflammatory medications, and physical therapy. In cases where pain is severe and does not respond to conservative care, surgical removal of the affected bone tissue may be considered. The condition is generally benign, meaning it does not spread or become life-threatening, and many patients do well with appropriate management.

Also known as:

Key symptoms:

Pain at the inner end of the collarbone, near the breastboneTenderness when pressing on the inner collarbone areaA hard lump or swelling at the inner collarboneAching that may worsen with arm movement or activityDiscomfort that can radiate to the shoulder or chest areaStiffness around the collarbone and shoulder jointSymptoms that may flare during or after pregnancy

Clinical phenotype terms (5)— hover any for plain English
Patchy reduction of bone mineral densityHP:0010657Shoulder painHP:0030834Limited shoulder movementHP:0006467
Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Adult

Begins in adulthood (age 18 or older)

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Medial condensing osteitis of the clavicle.

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No actively recruiting trials found for Medial condensing osteitis of the clavicle at this time.

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No specialists are currently listed for Medial condensing osteitis of the clavicle.

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Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Medial condensing osteitis of the clavicle.

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Community

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Questions for your doctor

Bring these to your next appointment

  • Q1.How confident are you in this diagnosis, and do I need a biopsy to rule out cancer or infection?,What imaging tests do I need, and how often should I be monitored?,What pain management options are safe for me, especially if I am pregnant or breastfeeding?,When would you recommend surgery, and what does recovery look like?,Is there anything I should avoid doing to prevent my symptoms from getting worse?,Could this condition come back after treatment?,Should I see any other specialists, such as a rheumatologist or orthopedic surgeon?

Common questions about Medial condensing osteitis of the clavicle

What is Medial condensing osteitis of the clavicle?

Medial condensing osteitis of the clavicle (also sometimes called condensing osteitis of the medial clavicle) is a rare, non-cancerous bone condition that affects the inner end of the collarbone — the part closest to the breastbone. In this condition, the bone tissue in that area becomes unusually dense and thickened over time. This happens because the bone is reacting to stress or irritation, causing it to produce extra bone material. It is not an infection, not a tumor, and not caused by injury, though it can sometimes be mistaken for those things. The most common symptom is pain and tender

How is Medial condensing osteitis of the clavicle inherited?

Medial condensing osteitis of the clavicle follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Medial condensing osteitis of the clavicle typically begin?

Typical onset of Medial condensing osteitis of the clavicle is adult. Age of onset can vary across affected individuals.