Long chain acyl-CoA dehydrogenase deficiency

Last reviewed

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ORPHA:99900
Who is this for?
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6Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Long chain acyl-CoA dehydrogenase deficiency.

View clinical trials →

No actively recruiting trials found for Long chain acyl-CoA dehydrogenase deficiency at this time.

New trials open frequently. Follow this disease to get notified.

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Specialists

6 foundView all specialists →
AP
Andreas M Fritzen, Associate Professor
Specialist
PI on 1 active trial1 Long chain acyl-CoA dehydrogenase deficiency publication
PM
Patrick Verloo, MD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Long chain acyl-CoA dehydrogenase deficiency.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Long chain acyl-CoA dehydrogenase deficiency

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Long chain acyl-CoA dehydrogenase deficiency

Which specialists treat Long chain acyl-CoA dehydrogenase deficiency?

6 specialists and care centers treating Long chain acyl-CoA dehydrogenase deficiency are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.