Localized dystrophic epidermolysis bullosa

Last reviewed

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ORPHA:595356OMIM:607523Q81.2
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5Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Localized dystrophic epidermolysis bullosa.

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No actively recruiting trials found for Localized dystrophic epidermolysis bullosa at this time.

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Specialists

5 foundView all specialists →
SR
Sairekha Ravichandran
TAMPA, FL
Specialist
1 Localized dystrophic epidermolysis bullosa publication
NP
Nishit Patel
Specialist
1 Localized dystrophic epidermolysis bullosa publication
PR
Paul Rodriguez-Waitkus
TAMPA, FL
Specialist
1 Localized dystrophic epidermolysis bullosa publication
WC
Wei-Shen Chen
TAMPA, FL
Specialist
1 Localized dystrophic epidermolysis bullosa publication
PP
Pratiksha Patra
TAMPA, FL
Specialist
1 Localized dystrophic epidermolysis bullosa publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Localized dystrophic epidermolysis bullosa.

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Community

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Latest news about Localized dystrophic epidermolysis bullosa

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Localized dystrophic epidermolysis bullosa

Which specialists treat Localized dystrophic epidermolysis bullosa?

5 specialists and care centers treating Localized dystrophic epidermolysis bullosa are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.