Overview
Light Chain (AL) Amyloidosis is treated with 1 medication in our database, including Darzalex. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Janssen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Light Chain (AL) Amyloidosis treatment below.
Sporadic
Usually appears on its own, not inherited from a parent
Adult
Begins in adulthood (age 18 or older)
Treatments
2 availableDarzalex
light chain (AL) amyloidosis in combination with bortezomib, cyclophosphamide and dexamethasone in newly diagnosed patients
Darzalex Faspro
light chain (AL) amyloidosis in combination with bortezomib, cyclophosphamide and dexamethasone
Clinical Trials
View all trials with filters →No actively recruiting trials found for Light Chain (AL) Amyloidosis at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resources1 travel grant are also available for Light Chain (AL) Amyloidosis patients — see Travel Grants below ↓
Travel Grants
1 grantsCommunity
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Light Chain (AL) Amyloidosis
What is Light Chain (AL) Amyloidosis?
Light Chain (AL) Amyloidosis is treated with 1 medication in our database, including Darzalex. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Janssen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Light Chain (AL) Amyloidosis treatment below.
How is Light Chain (AL) Amyloidosis inherited?
Light Chain (AL) Amyloidosis follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Light Chain (AL) Amyloidosis typically begin?
Typical onset of Light Chain (AL) Amyloidosis is adult. Age of onset can vary across affected individuals.
Which specialists treat Light Chain (AL) Amyloidosis?
25 specialists and care centers treating Light Chain (AL) Amyloidosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Light Chain (AL) Amyloidosis?
1 FDA-approved treatment and 1 patient support program are currently tracked on UniteRare for Light Chain (AL) Amyloidosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.