Leber plus disease

Last reviewed

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ORPHA:99718OMIM:165200H47.2
Who is this for?
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14Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Leber plus disease.

View clinical trials →

No actively recruiting trials found for Leber plus disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Leber plus disease community →

Specialists

14 foundView all specialists →
MM
Michio Hirano, MD
NEW YORK, NY
Specialist
PI on 10 active trials
NM
Nancy Newman, MD
Specialist
PI on 2 active trials
SM
Sushanta Mallick
Specialist
PI on 3 active trials12 Leber plus disease publications
CM
CATHERINE J. VIGNAL, MD
Specialist
PI on 1 active trial
JM
J Timothy Stout, MD, PhD, MBA
Specialist
PI on 1 active trial
MP
Michel Michealides, Prof
Specialist
PI on 1 active trial
SP
Samuel G. Jacobson, MD, PhD
Specialist
PI on 1 active trial
AP
Alfredo Sadun, MD, PhD
PASADENA, CA
Specialist
PI on 1 active trial
RM
Rabia Ozden, MD
Specialist
PI on 1 active trial
MP
Marieke Podevin, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Leber plus disease.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Leber plus diseaseForum →

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Latest news about Leber plus disease

No recent news articles for Leber plus disease.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Leber plus disease

Which specialists treat Leber plus disease?

14 specialists and care centers treating Leber plus disease are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.