Lead poisoning

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35Specialists8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Lead poisoning, also called plumbism or lead toxicity, is a condition caused by the buildup of lead in the body, usually over months or years. Lead is a toxic heavy metal that was once commonly found in paint, gasoline, water pipes, and many industrial products. When lead enters the body through breathing, swallowing, or skin contact, it can damage nearly every organ system, with the brain, kidneys, blood, and nervous system being most affected. Children are especially vulnerable because their growing bodies absorb lead more easily, and their developing brains are more sensitive to its harmful effects. Symptoms of lead poisoning can be subtle at first and may include tiredness, stomach pain, headaches, irritability, and difficulty concentrating. In children, even low levels of lead exposure can cause learning difficulties, behavioral problems, and slowed growth. At very high levels, lead poisoning can cause seizures, coma, and even death. Chronic exposure can lead to kidney damage, high blood pressure, and anemia. Treatment depends on the level of lead in the blood. The most important step is identifying and removing the source of lead exposure. For mild cases, this alone may be enough. For moderate to severe cases, chelation therapy is used — these are medications that bind to lead in the body and help it get removed through urine. Common chelation agents include succimer (Chemet), edetate calcium disodium (Calcium EDTA), and dimercaprol (BAL in Oil). Early detection and treatment can prevent many of the long-term complications, but some damage, especially to the developing brain in young children, may be permanent.

Also known as:

Key symptoms:

Fatigue and tirednessStomach pain and crampingHeadachesIrritability and mood changesDifficulty concentrating or paying attentionMemory problemsLoss of appetiteConstipationJoint and muscle painNumbness or tingling in hands and feetAnemia (low red blood cell count)Slowed growth in childrenLearning difficulties in childrenBehavioral problems in childrenHigh blood pressure in adults

Clinical phenotype terms (50)— hover any for plain English
Renal tubular dysfunctionHP:0000124
Inheritance

Sporadic

Usually appears on its own, not inherited from a parent

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

Orphanet ↗NORD ↗

FDA & Trial Timeline

2 events
Jul 2025The α-gal Syndrome - Investigating Immune Reactions to Tick Bites

Luxembourg Institute of Health

TrialRECRUITING
Nov 2018Effectiveness of Environmental Measures to Eliminate the Risks of Lead Exposure in Infant Lead Poisoning

Assistance Publique Hopitaux De Marseille

TrialNOT YET RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Lead poisoning.

View clinical trials →

No actively recruiting trials found for Lead poisoning at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Lead poisoning community →

Specialists

Showing 25 of 35View all specialists →
WM
Walter Rogan, M.D.
Specialist
PI on 1 active trial
RM
Roberto Q Padilha, MD
Specialist
PI on 1 active trial
JM
Julia Von Oettingen, MD
Specialist
PI on 1 active trial
AP
Alvaro N Atallah, phD
Specialist
PI on 1 active trial
MT
Maria Jose Talayero
Specialist
1 Lead poisoning publication
MT
Marcela Tamayo-Ortiz
Specialist
1 Lead poisoning publication
KJ
Kelly Johnson-Arbor
WASHINGTON, DC
Specialist
1 Lead poisoning publication
ME
Michele F Eisenga
Specialist
1 Lead poisoning publication
PR
Pien Rawee
Specialist
1 Lead poisoning publication
DG
Divyani Garg
Specialist
1 Lead poisoning publication
SD
Siddhartha Dhar
Specialist
1 Lead poisoning publication
DB
David C Bellinger
Specialist
2 Lead poisoning publications
AN
Ana Navas-Acien
Specialist
2 Lead poisoning publications
MH
Marissa Hauptman
BOSTON, MA
Specialist
2 Lead poisoning publications
AP
Amy L Pyle-Eilola
COLUMBUS, OH
Specialist
1 Lead poisoning publication
DB
Dustin Bunch
CLEVELAND, OH
Specialist
1 Lead poisoning publication
BL
Bruce Lanphear
Specialist
2 Lead poisoning publications
EP
EMILIE GARRIDO PRADALIE
Specialist
PI on 13 active trials
RP
Rebecca J Stoltzfus, PhD
LANCASTER, PA
Specialist
PI on 1 active trial
SP
Susan H Benoff, PhD
Specialist
PI on 1 active trial
JP
Jin Ya ping, professor
Specialist
PI on 1 active trial
MM
Michael B Zimmermann, Prof. Dr. med
CROMWELL, CT
Specialist
PI on 1 active trial
NP
Nic Timpson, PhD
Specialist
PI on 1 active trial
LM
Leona Cuttler, M.D.
Specialist
PI on 1 active trial
MP
M. Douglas Ris, Ph.D.
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Lead poisoning.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Lead poisoning

Disease timeline:

New recruiting trial: The α-gal Syndrome - Investigating Immune Reactions to Tick Bites

A new clinical trial is recruiting patients for Lead poisoning

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Questions for your doctor

Bring these to your next appointment

  • Q1.What is my (or my child's) current blood lead level, and what does it mean?,How do we find and remove the source of lead exposure?,Does my child need chelation therapy, and what are the risks and benefits?,Should my child be evaluated for learning or developmental delays?,How often should blood lead levels be rechecked?,Are there dietary changes that can help reduce lead absorption?,Should other family members or siblings also be tested for lead?

Common questions about Lead poisoning

What is Lead poisoning?

Lead poisoning, also called plumbism or lead toxicity, is a condition caused by the buildup of lead in the body, usually over months or years. Lead is a toxic heavy metal that was once commonly found in paint, gasoline, water pipes, and many industrial products. When lead enters the body through breathing, swallowing, or skin contact, it can damage nearly every organ system, with the brain, kidneys, blood, and nervous system being most affected. Children are especially vulnerable because their growing bodies absorb lead more easily, and their developing brains are more sensitive to its harmful

How is Lead poisoning inherited?

Lead poisoning follows a sporadic inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

Which specialists treat Lead poisoning?

25 specialists and care centers treating Lead poisoning are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.