Late infantile CLN8 disease

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:700484
Who is this for?
Show terms as
8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Late infantile CLN8 disease.

View clinical trials →

No actively recruiting trials found for Late infantile CLN8 disease at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Late infantile CLN8 disease community →

No specialists are currently listed for Late infantile CLN8 disease.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
⚗️ Trial Site

Arkansas Children's Hospital

📍 Little Rock, Arkansas

⚗️ Trial Site

Children's Hospital of Orange County

📍 Orange, California

👤 Richard Neibeger, MD

⚗️ Trial Site

Nationwide Children's Hospital

📍 Columbus, Ohio

⚗️ Trial Site

Seattle Children's Hospital

📍 Seattle, Washington

👤 Study Director

👤 Richard Neibeger, MD

⚗️ Trial Site

Children's National Hospital

📍 Washington D.C., District of Columbia

⚗️ Trial Site

Rush University Medical Center

📍 Chicago, Illinois

⚗️ Trial Site

Children's Hospital of Colorado

📍 Aurora, Colorado

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

Travel Grants

No travel grants are currently matched to Late infantile CLN8 disease.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Late infantile CLN8 diseaseForum →

No community posts yet. Be the first to share your experience with Late infantile CLN8 disease.

Start the conversation →

Latest news about Late infantile CLN8 disease

Disease timeline:

New trial: Cerliponase Alfa Observational Study in the US

Phase NA trial recruiting. Cerliponase Alfa

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.