Overview
Laron Syndrome is treated with 1 medication in our database, including Increlex. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Ipsen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Laron Syndrome treatment below.
Also known as:
Clinical phenotype terms— hover any for plain English:
Autosomal recessive
Passed on when both parents carry the same gene change; often skips generations
Childhood
Begins in childhood, roughly ages 1 to 12
Treatments
3 availableNutropin Depot
Long-term treatment of growth failure due to a lack of adequate endogenous growth hormone secetion for once- or twice-a-month administration
Sogroya
Replacement of endogenous GH in adults with growth hormone deficiency (GHD)
Increlex
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available (An annual calendar year maximum benefit applies, but the specific dollar amount is not stated) *
Clinical Trials
View all trials with filters →No actively recruiting trials found for Laron syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
2 resourcesTravel Grants
No travel grants are currently matched to Laron syndrome.
Community
No community posts yet. Be the first to share your experience with Laron syndrome.
Start the conversation →Latest news about Laron syndrome
No recent news articles for Laron syndrome.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Laron syndrome
What is Laron syndrome?
Laron Syndrome is treated with 1 medication in our database, including Increlex. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Ipsen. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Laron Syndrome treatment below.
How is Laron syndrome inherited?
Laron syndrome follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
At what age does Laron syndrome typically begin?
Typical onset of Laron syndrome is childhood. Age of onset can vary across affected individuals.
Which specialists treat Laron syndrome?
12 specialists and care centers treating Laron syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Laron syndrome?
1 FDA-approved treatment are currently tracked on UniteRare for Laron syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.