King-Denborough syndrome

Last reviewed

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ORPHA:99741OMIM:619542G71.2
Who is this for?
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for King-Denborough syndrome.

View clinical trials →

No actively recruiting trials found for King-Denborough syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the King-Denborough syndrome community →

Specialists

15 foundView all specialists →
MF
Mahmoud Fassad
Specialist
1 King-Denborough syndrome publication
KP
Krutik Patel
Specialist
1 King-Denborough syndrome publication
MB
Michelle Bisschoff
Specialist
1 King-Denborough syndrome publication
AV
Armand Vorster
Specialist
1 King-Denborough syndrome publication
TM
Tendai Makwikwi
Specialist
1 King-Denborough syndrome publication
RH
Ronel Human
Specialist
1 King-Denborough syndrome publication
MN
Malebo Nonyane
Specialist
1 King-Denborough syndrome publication
MS
Maryke Schoonen
Specialist
1 King-Denborough syndrome publication
JV
Jana Vandrovcova
Specialist
1 King-Denborough syndrome publication
MH
Michael G Hanna
Specialist
1 King-Denborough syndrome publication
RT
Robert W Taylor
Specialist
1 King-Denborough syndrome publication
LW
Lindsay A Wilson
Specialist
1 King-Denborough syndrome publication
FW
Francois H van der Westhuizen
Specialist
1 King-Denborough syndrome publication
BV
Barend C Vorster
HOOD RIVER, OR
Specialist
1 King-Denborough syndrome publication
EL
Elsa Lubbe
INDIANAPOLIS, IN
Specialist
1 King-Denborough syndrome publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to King-Denborough syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about King-Denborough syndrome

No recent news articles for King-Denborough syndrome.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about King-Denborough syndrome

Which specialists treat King-Denborough syndrome?

15 specialists and care centers treating King-Denborough syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.