Overview
Also known as:
FDA & Trial Timeline
1 eventCeprotin: FDA approved
Prevention and treatment of venous thrombosis and purpura fulminans
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Specialists
View all specialists →No specialists are currently listed for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Financial Resources
1 resourcesCeprotin
Baxalta US, Inc.
Travel Grants
No travel grants are currently matched to KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome.
Community
No community posts yet. Be the first to share your experience with KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome.
Start the conversation →Latest news about KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome
No recent news articles for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome.
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome
What treatment and support options exist for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome?
1 patient support program are currently tracked on UniteRare for KIAA1109-related early lethal congenital brain malformations-arthrogryposis syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.