Immune dysregulation disease with immunodeficiency associated with EBV susceptibility

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:664456
Who is this for?
Show terms as
1FDA treatments8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Oct 1989

Lutrepulse: FDA approved

For induction of ovulation in women with hypothalamic amenorrhea due to a deficiency or absence in the quantity or pulse pattern of endogenous GnRH secretion.

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

Lutrepulse

Gonadorelin acetate· Ferring Laboratories, Inc.Orphan Drug

No actively recruiting trials found for Immune dysregulation disease with immunodeficiency associated with EBV susceptibility at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Immune dysregulation disease with immunodeficiency associated with EBV susceptibility community →

No specialists are currently listed for Immune dysregulation disease with immunodeficiency associated with EBV susceptibility.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Immune dysregulation disease with immunodeficiency associated with EBV susceptibility.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Immune dysregulation disease with immunodeficiency associated with EBV susceptibilityForum →

No community posts yet. Be the first to share your experience with Immune dysregulation disease with immunodeficiency associated with EBV susceptibility.

Start the conversation →

Latest news about Immune dysregulation disease with immunodeficiency associated with EBV susceptibility

No recent news articles for Immune dysregulation disease with immunodeficiency associated with EBV susceptibility.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Immune dysregulation disease with immunodeficiency associated with EBV susceptibility

What treatment and support options exist for Immune dysregulation disease with immunodeficiency associated with EBV susceptibility?

1 patient support program are currently tracked on UniteRare for Immune dysregulation disease with immunodeficiency associated with EBV susceptibility. See the treatments and support programs sections for copay assistance, eligibility, and contact details.