Idiopathic subglottic stenosis

Last reviewed March 21, 2026

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ORPHA:652681J38.6

Who is this for?

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1Active trials 19Specialists 8Treatment centers

Where are you in your journey?

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.

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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events

Jul 2026Voice Quality Analysis of Patients With Laryngotracheal Stenosis

Johns Hopkins University

TrialNOT YET RECRUITING

May 2026Use of Steroid Injections to Prevent the Recurrence of Tracheal Stenosis in Idiopathic Subglottic Stenosis

Johns Hopkins University — PHASE3

TrialNOT YET RECRUITING

Feb 2025Effects of Interleukin (IL)-17A Inhibition on Idiopathic Subglottic Stenosis

Yale University — PHASE2

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Idiopathic subglottic stenosis.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →

Phase 21 trial

Effects of Interleukin (IL)-17A Inhibition on Idiopathic Subglottic Stenosis

Phase 2

Active

PI: Nwanmegha Young, MD (Yale University) · Sites: New Haven, Connecticut · Age: 18–99 yrs

Specialists

19 foundView all specialists →

AM

Alexander Hillel, MD

BALTIMORE, MD

Specialist

PI on 3 active trials

Active trials Directions Travel grants

NM

Nwanmegha Young, MD

NEW YORK, NY

Specialist

PI on 1 active trial

Active trials Directions Travel grants

DE

Dale C Ekbom

ROCHESTER, MN

Specialist

6 Idiopathic subglottic stenosis publications

Directions Travel grants

SB

Semirra L Bayan

ROCHESTER, MN

Specialist

5 Idiopathic subglottic stenosis publications

Directions Travel grants

DF

David O Francis

Specialist

4 Idiopathic subglottic stenosis publications

Directions Travel grants

JK

Jan L Kasperbauer

ROCHESTER, MN

Specialist

4 Idiopathic subglottic stenosis publications

Directions Travel grants

KM

Kevin Motz

BALTIMORE, MD

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

DL

David G Lott

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

SV

Sunil P Verma

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

AA

Andrew S Awadallah

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

AB

Andrew J Bowen

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

TO

Thomas J O'Byrne

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

AB

Andrew Jay Bowen

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

EE

Eric S Edell

UPPER MARLBORO, MD

Specialist

6 Idiopathic subglottic stenosis publications

Directions Travel grants

YK

Yousuf H Khalil

SYRACUSE, NY

Specialist

3 Idiopathic subglottic stenosis publications

Directions Travel grants

AG

Alexander Gelbard

NASHVILLE, TN

Specialist

7 Idiopathic subglottic stenosis publications

Directions Travel grants

AH

Alexander T Hillel

BALTIMORE, MD

Specialist

6 Idiopathic subglottic stenosis publications

Directions Travel grants

AM

Alexander Gelbard, MD

NASHVILLE, TN

Specialist

Anti-neutrophil cytoplasmic antibody-associated vasculitis

PI on 2 active trials

Active trials Directions Travel grants

MM

Marc G Ghany, M.D.

BETHESDA, MD

Specialist

Adult hepatocellular carcinoma Hepatitis delta Holt-Oram syndrome

PI on 4 active trials

Active trials Directions Travel grants

Treatment Centers

8 centers

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Idiopathic subglottic stenosis.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Idiopathic subglottic stenosis

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

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Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Idiopathic subglottic stenosis

Are there clinical trials for Idiopathic subglottic stenosis?

Yes — 1 recruiting clinical trial is currently listed for Idiopathic subglottic stenosis on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Idiopathic subglottic stenosis?

19 specialists and care centers treating Idiopathic subglottic stenosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.