Overview
Hereditary Neutropenia is treated with 1 medication in our database, including NYVEPRIA. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Pfizer. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Neutropenia treatment below.
Variable
Can be inherited in different ways depending on the underlying gene
Neonatal
Begins at or shortly after birth (first 4 weeks)
Treatments
1 availableNYVEPRIA
* Patient Copay Amount: As little as $0 per treatment for certain injectable or infusion medicines, and as little as $0 per month for oral treatments. * Maximum Annual Benefit Limit: Varies by produc
Clinical Trials
View all trials with filters →No actively recruiting trials found for Hereditary Neutropenia at this time.
New trials open frequently. Follow this disease to get notified.
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Hereditary Neutropenia.
Community
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Start the conversation →Latest news about Hereditary Neutropenia
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Hereditary Neutropenia
What is Hereditary Neutropenia?
Hereditary Neutropenia is treated with 1 medication in our database, including NYVEPRIA. 1 of these has manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Pfizer. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Neutropenia treatment below.
At what age does Hereditary Neutropenia typically begin?
Typical onset of Hereditary Neutropenia is neonatal. Age of onset can vary across affected individuals.
Which specialists treat Hereditary Neutropenia?
1 specialists and care centers treating Hereditary Neutropenia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Hereditary Neutropenia?
1 FDA-approved treatment are currently tracked on UniteRare for Hereditary Neutropenia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.