Overview
Hereditary Hypophosphatemia is treated with 3 medications in our database, including Sevelamer Hydrochloride, Sevelamer hydrochloride, Dibasic Sodium Phosphate, Monobasic Potassium Phosphate and Monobasic Sodium Phosphate. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sanofi, Beach. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Hypophosphatemia treatment below.
Variable
Can be inherited in different ways depending on the underlying gene
Childhood
Begins in childhood, roughly ages 1 to 12
FDA & Trial Timeline
1 eventData sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
2 availableDibasic Sodium Phosphate, Monobasic Potassium Phosphate and Monobasic Sodium Phosphate
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Sevelamer Hydrochloride
Detailed copay and financial assistance information is not publicly available for this medication at this time. Please consult your pharmacist or the manufacturer's official patient support program fo
Clinical Trials
View all trials with filters →No actively recruiting trials found for Hereditary Hypophosphatemia at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Hereditary Hypophosphatemia.
Community
No community posts yet. Be the first to share your experience with Hereditary Hypophosphatemia.
Start the conversation →Latest news about Hereditary Hypophosphatemia
Disease timeline:
New recruiting trial: Effective Dosing of Burosumab in XLH
A new clinical trial is recruiting patients for Hereditary Hypophosphatemia
New recruiting trial: Registry for Patients With X-Linked Hypophosphatemia
A new clinical trial is recruiting patients for Hereditary Hypophosphatemia
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Hereditary Hypophosphatemia
What is Hereditary Hypophosphatemia?
Hereditary Hypophosphatemia is treated with 3 medications in our database, including Sevelamer Hydrochloride, Sevelamer hydrochloride, Dibasic Sodium Phosphate, Monobasic Potassium Phosphate and Monobasic Sodium Phosphate. 3 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Sanofi, Beach. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Hypophosphatemia treatment below.
At what age does Hereditary Hypophosphatemia typically begin?
Typical onset of Hereditary Hypophosphatemia is childhood. Age of onset can vary across affected individuals.
Which specialists treat Hereditary Hypophosphatemia?
2 specialists and care centers treating Hereditary Hypophosphatemia are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Hereditary Hypophosphatemia?
2 FDA-approved treatments are currently tracked on UniteRare for Hereditary Hypophosphatemia. See the treatments and support programs sections for copay assistance, eligibility, and contact details.