Overview
Hereditary Hemochromatosis is treated with 5 medications in our database, including TERUFLEX BLOOD with Diversion Blood Sampling Arm 70 mL CPDA-1, deferasirox, Deferasirox Oral Granules, Jadenu, Deferoxamine. 4 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Terumo, Novartis. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Hemochromatosis treatment below.
Variable
Can be inherited in different ways depending on the underlying gene
Variable
Can begin at different ages, from infancy through adulthood
Treatments
No FDA-approved treatments are currently listed for Hereditary Hemochromatosis.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for Hereditary Hemochromatosis at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Hereditary Hemochromatosis.
Community
No community posts yet. Be the first to share your experience with Hereditary Hemochromatosis.
Start the conversation →Latest news about Hereditary Hemochromatosis
Disease timeline:
New recruiting trial: Impact of Transferrin Saturation Guided Maintenance Treatment on Quality of Life in HFE Haemochromatosis
A new clinical trial is recruiting patients for Hereditary Hemochromatosis
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Hereditary Hemochromatosis
What is Hereditary Hemochromatosis?
Hereditary Hemochromatosis is treated with 5 medications in our database, including TERUFLEX BLOOD with Diversion Blood Sampling Arm 70 mL CPDA-1, deferasirox, Deferasirox Oral Granules, Jadenu, Deferoxamine. 4 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Terumo, Novartis. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hereditary Hemochromatosis treatment below.
Which specialists treat Hereditary Hemochromatosis?
11 specialists and care centers treating Hereditary Hemochromatosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.