Hemophagocytic Lymphohistiocytosis

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Who is this for?
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2FDA treatments1Specialists8Treatment centers2Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Hemophagocytic Lymphohistiocytosis is treated with 2 medications in our database, including Sylvant, GAMIFANT. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Recordati, Sobi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hemophagocytic Lymphohistiocytosis treatment below.

Also known as:

Inheritance

Variable

Can be inherited in different ways depending on the underlying gene

Age of Onset

Variable

Can begin at different ages, from infancy through adulthood

NORD ↗

Treatments

2 available

GAMIFANT

emapalumab-lzsg· Sobi

* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi

Sylvant

Siltuximab· Recordati

* Patient Copay Amount: As little as $0 per infusion * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Must be an eligible commercially insured patient; program i

No actively recruiting trials found for Hemophagocytic Lymphohistiocytosis at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Hemophagocytic Lymphohistiocytosis community →

Specialists

1 foundView all specialists →
BD
Bellicum Pharmaceuticals Senior Director
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

2 grants

Immune Deficiency Foundation - Gamifant Copay Assistance

Immune Deficiency Foundation

This directory lists numerous third-party organizations providing financial aid, travel assistance, and insurance support for patients with primary immunodeficiency. Eligibility is determined by each individual program based on factors such as specific rare disease diagnosis, underinsured status, or financial hardship.

Apply ↗

Gamifant Cares

Genentech

This resource page provides a directory of external patient assistance programs and drug-specific financial support for oncology patients. It links to various third-party foundations and pharmaceutical reimbursement programs rather than defining specific mathematical eligibility criteria for a single internal grant.

Apply ↗

Community

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Latest news about Hemophagocytic Lymphohistiocytosis

No recent news articles for Hemophagocytic Lymphohistiocytosis.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Hemophagocytic Lymphohistiocytosis

What is Hemophagocytic Lymphohistiocytosis?

Hemophagocytic Lymphohistiocytosis is treated with 2 medications in our database, including Sylvant, GAMIFANT. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Recordati, Sobi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hemophagocytic Lymphohistiocytosis treatment below.

Which specialists treat Hemophagocytic Lymphohistiocytosis?

1 specialists and care centers treating Hemophagocytic Lymphohistiocytosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.

What treatment and support options exist for Hemophagocytic Lymphohistiocytosis?

2 FDA-approved treatments and 1 patient support program are currently tracked on UniteRare for Hemophagocytic Lymphohistiocytosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.