Overview
Hemophagocytic Lymphohistiocytosis is treated with 2 medications in our database, including Sylvant, GAMIFANT. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Recordati, Sobi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hemophagocytic Lymphohistiocytosis treatment below.
Also known as:
Variable
Can be inherited in different ways depending on the underlying gene
Variable
Can begin at different ages, from infancy through adulthood
Treatments
2 availableGAMIFANT
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi
Sylvant
* Patient Copay Amount: As little as $0 per infusion * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Must be an eligible commercially insured patient; program i
Clinical Trials
View all trials with filters →No actively recruiting trials found for Hemophagocytic Lymphohistiocytosis at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
2 grantsImmune Deficiency Foundation - Gamifant Copay Assistance
Immune Deficiency Foundation
This directory lists numerous third-party organizations providing financial aid, travel assistance, and insurance support for patients with primary immunodeficiency. Eligibility is determined by each individual program based on factors such as specific rare disease diagnosis, underinsured status, or financial hardship.
Gamifant Cares
Genentech
This resource page provides a directory of external patient assistance programs and drug-specific financial support for oncology patients. It links to various third-party foundations and pharmaceutical reimbursement programs rather than defining specific mathematical eligibility criteria for a single internal grant.
Community
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Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Hemophagocytic Lymphohistiocytosis
What is Hemophagocytic Lymphohistiocytosis?
Hemophagocytic Lymphohistiocytosis is treated with 2 medications in our database, including Sylvant, GAMIFANT. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Recordati, Sobi. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Hemophagocytic Lymphohistiocytosis treatment below.
Which specialists treat Hemophagocytic Lymphohistiocytosis?
1 specialists and care centers treating Hemophagocytic Lymphohistiocytosis are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Hemophagocytic Lymphohistiocytosis?
2 FDA-approved treatments and 1 patient support program are currently tracked on UniteRare for Hemophagocytic Lymphohistiocytosis. See the treatments and support programs sections for copay assistance, eligibility, and contact details.