Germinoma of the central nervous system

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ORPHA:91352C72.9
Who is this for?
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23Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Germinoma of the central nervous system.

View clinical trials →

No actively recruiting trials found for Germinoma of the central nervous system at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Germinoma of the central nervous system community →

Specialists

23 foundView all specialists →
DM
Darren Feldman, MD
NEW YORK, NY
Specialist
PI on 8 active trials
YK
Yvonne Klaver
Specialist
PI on 1 active trial
MK
M Kramer
Specialist
PI on 1 active trial
IC
I Coremans
Specialist
PI on 1 active trial
HW
Hiske van der Weide
Specialist
PI on 1 active trial1 Germinoma of the central nervous system publication
AR
A Mendez Romero
Specialist
PI on 1 active trial11 Germinoma of the central nervous system publications
MK
M Kroesen
MILFORD, MA
Specialist
PI on 1 active trial
DE
Danielle Eekers
Specialist
PI on 1 active trial
JJ
J Jaspers
WENATCHEE, WA
Specialist
PI on 1 active trial
SD
Siamak Daneshmand
LOS ANGELES, CA
Specialist
PI on 1 active trial3 Germinoma of the central nervous system publications
IC
Inge Compter
Specialist
PI on 1 active trial
JZ
Jaap Zindler
Specialist
PI on 1 active trial
RM
Roger J. Packer, MD
WASHINGTON, DC
Specialist
PI on 5 active trials
JM
John W Glod, M.D.
NEW BRUNSWICK, NJ
Specialist
PI on 4 active trials
AD
Aude FLECHON, Dr
Specialist
PI on 1 active trial
MM
Michael Heinrich, MD
Specialist
PI on 1 active trial
UB
Ute K Bartels
Specialist
PI on 1 active trial3 Germinoma of the central nervous system publications
JF
Jonathan Shamash, MD FRCP
Specialist
PI on 1 active trial
JP
Joo-young Kim, M.D., Ph.D.
LOS ANGELES, CA
Specialist
PI on 1 active trial
MP
Mette Pernille Myklebust, PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Germinoma of the central nervous system.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Germinoma of the central nervous system

Disease timeline:

New recruiting trial: Radiotherapy vs Observation for Post Chemotherapy Residual Mass in Advanced Seminoma

A new clinical trial is recruiting patients for Germinoma of the central nervous system

New recruiting trial: De-escalation Study for Stage IIa/IIb < 3 cm Seminoma

A new clinical trial is recruiting patients for Germinoma of the central nervous system

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Germinoma of the central nervous system

Which specialists treat Germinoma of the central nervous system?

23 specialists and care centers treating Germinoma of the central nervous system are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.