Fibrous dysplasia/McCune-Albright syndrome

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ORPHA:595216
Who is this for?
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8Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Fibrous dysplasia/McCune-Albright syndrome.

View clinical trials →

No actively recruiting trials found for Fibrous dysplasia/McCune-Albright syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Fibrous dysplasia/McCune-Albright syndrome community →

Specialists

8 foundView all specialists →
AM
AstraZeneca Arimidex Medical Science Director, MD
Specialist
PI on 1 active trial1 Fibrous dysplasia/McCune-Albright syndrome publication
AM
AstraZeneca Faslodex Medical Science Director, MD
Specialist
PI on 1 active trial1 Fibrous dysplasia/McCune-Albright syndrome publication
NP
Natasha Appelman-Dijsktra, MD, PhD
Specialist
PI on 1 active trial
AM
Angela L Turpin, MD
KANSAS CITY, MO
Specialist
PI on 1 active trial
BP
BACCHETTA Justine, Pr
Specialist
PI on 1 active trial
PP
PHILIPPE ORCEL, MD PhD
Specialist
PI on 1 active trial
RP
ROLAND D CHAPURLAT, MD PhD
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Fibrous dysplasia/McCune-Albright syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Fibrous dysplasia/McCune-Albright syndrome

No recent news articles for Fibrous dysplasia/McCune-Albright syndrome.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Fibrous dysplasia/McCune-Albright syndrome

Which specialists treat Fibrous dysplasia/McCune-Albright syndrome?

8 specialists and care centers treating Fibrous dysplasia/McCune-Albright syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.