Fibronectin glomerulopathy

Last reviewed

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ORPHA:84090OMIM:137950N07.6
Who is this for?
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Abnormal glomerular mesangium morphologyHP:0001966GlomerulopathyHP:0100820
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Fibronectin glomerulopathy.

View clinical trials →

No actively recruiting trials found for Fibronectin glomerulopathy at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Fibronectin glomerulopathy community →

Specialists

15 foundView all specialists →
LB
Lihong Bu
ROCHESTER, MN
Specialist
1 Fibronectin glomerulopathy publication
AI
Ayana Ichikura-Iida
Specialist
1 Fibronectin glomerulopathy publication
NK
Nathaniel Klair
LOS ANGELES, CA
Specialist
1 Fibronectin glomerulopathy publication
YN
Yoshikuni Nagayama
Specialist
1 Fibronectin glomerulopathy publication
JC
Ji-Young Choi
Specialist
1 Fibronectin glomerulopathy publication
MK
Mee-Seon Kim
Specialist
1 Fibronectin glomerulopathy publication
ZK
Zehwan Kim
Specialist
1 Fibronectin glomerulopathy publication
SM
Salman B Mahmood
MINNEAPOLIS, MN
Specialist
1 Fibronectin glomerulopathy publication
RE
Rasha El-Rifai
Specialist
1 Fibronectin glomerulopathy publication
CN
Cynthia C Nast
WEST HOLLYWOOD, CA
Specialist
1 Fibronectin glomerulopathy publication
AB
Adam Bregman
MADISON, WI
Specialist
1 Fibronectin glomerulopathy publication
MO
Masako Otani
Specialist
1 Fibronectin glomerulopathy publication
MH
Mariko Hashimoto
Specialist
1 Fibronectin glomerulopathy publication
YX
Yang Xia
Specialist
1 Fibronectin glomerulopathy publication
BS
Bairu Shi
Specialist
1 Fibronectin glomerulopathy publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Fibronectin glomerulopathy.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Fibronectin glomerulopathy

No recent news articles for Fibronectin glomerulopathy.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Fibronectin glomerulopathy

Which specialists treat Fibronectin glomerulopathy?

15 specialists and care centers treating Fibronectin glomerulopathy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.