Extragonadal non-dysgerminomatous germ cell tumor

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ORPHA:99913
Who is this for?
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10Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Jul 2021A Study of a New Way to Treat Children and Young Adults With a Brain Tumor Called NGGCT

Children's Oncology Group — PHASE2

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Extragonadal non-dysgerminomatous germ cell tumor.

View clinical trials →

No actively recruiting trials found for Extragonadal non-dysgerminomatous germ cell tumor at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Extragonadal non-dysgerminomatous germ cell tumor community →

Specialists

10 foundView all specialists →
DM
Darren Feldman, MD
NEW YORK, NY
Specialist
PI on 8 active trials
SM
Shannon M MacDonald
Birmingham, Alabama
Specialist

Rare Disease Specialist

PI on 1 active trial29 Extragonadal non-dysgerminomatous germ cell tumor publications
AM
Aleksei M Belyaev, MD,DSc,Prof.
Specialist
PI on 1 active trial
AM
Anna Pawlowska, MD
DUARTE, CA
Specialist
PI on 3 active trials
DM
Dean F. Bajorin, MD
NEW YORK, NY
Specialist
PI on 5 active trials
GM
Gnanamba V. Kondagunta, MD
MIDDLETOWN, NY
Specialist
PI on 3 active trials
DF
Darren Feldman
NEW YORK, NY
Specialist
PI on 1 active trial36 Extragonadal non-dysgerminomatous germ cell tumor publications

Treatment Centers

8 centers
⚗️ Trial Site

Children's Hospital Colorado

📍 Aurora, Colorado

👤 Zachary Grinspan, MD

⚗️ Trial Site

Arkansas Children's Hospital

📍 Little Rock, Arkansas

⚗️ Trial Site

Children's Hospital of Orange County

📍 Orange, California

👤 Richard Neibeger, MD

⚗️ Trial Site

Banner University Medical Center - Tucson

📍 Tucson, Arizona

⚗️ Trial Site

Cedars Sinai Medical Center

📍 Los Angeles, California

👤 Janssen Research & Development, LLC Clinical Trial

⚗️ Trial Site

University of Arizona Cancer Center-North Campus

📍 Tucson, Arizona

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

Travel Grants

No travel grants are currently matched to Extragonadal non-dysgerminomatous germ cell tumor.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Extragonadal non-dysgerminomatous germ cell tumor

Disease timeline:

New trial: A Study of a New Way to Treat Children and Young Adults With a Brain Tumor Called NGGCT

Phase PHASE2 trial recruiting. Biospecimen Collection

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Extragonadal non-dysgerminomatous germ cell tumor

Which specialists treat Extragonadal non-dysgerminomatous germ cell tumor?

10 specialists and care centers treating Extragonadal non-dysgerminomatous germ cell tumor are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.