Overview
Extensor tendons of finger anomalies is a rare congenital condition in which the tendons that straighten (extend) the fingers are not formed or arranged normally. These tendons run along the back of the hand and fingers, and when they develop abnormally before birth, it can affect how well a person can straighten or move their fingers. The condition falls under a broader group of congenital limb and skeletal malformations. People with this condition may notice difficulty fully extending one or more fingers, unusual finger postures, or limited hand function. The severity can vary widely — some individuals have mild limitations that barely affect daily tasks, while others may have more significant hand function problems. The anomalies may occur on their own (isolated) or as part of a broader syndrome involving other skeletal or limb differences. Treatment depends on how much the anomaly affects hand function. Options may include occupational therapy to improve hand strength and flexibility, splinting to support proper finger positioning, or in some cases, surgical repair or reconstruction of the affected tendons. Early evaluation by a hand specialist or orthopedic surgeon is important to determine the best approach. There is no single cure, but many people benefit from a combination of therapy and, when needed, surgery to improve hand use.
Also known as:
Key symptoms:
Difficulty straightening one or more fingersUnusual finger posture or positioningLimited range of motion in the fingersReduced grip strengthFingers that appear to droop or stay bentDifficulty with fine motor tasks like buttoning clothesAbnormal appearance of the back of the handStiffness in the finger jointsDifficulty grasping small objectsAsymmetry between hands if only one side is affected
Clinical phenotype terms (6)— hover any for plain English
Variable
Can be inherited in different ways depending on the underlying gene
Neonatal
Begins at or shortly after birth (first 4 weeks)
Treatments
No FDA-approved treatments are currently listed for Extensor tendons of finger anomalies.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for Extensor tendons of finger anomalies at this time.
New trials open frequently. Follow this disease to get notified.
Specialists
View all specialists →No specialists are currently listed for Extensor tendons of finger anomalies.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Extensor tendons of finger anomalies.
Community
No community posts yet. Be the first to share your experience with Extensor tendons of finger anomalies.
Start the conversation →Latest news about Extensor tendons of finger anomalies
No recent news articles for Extensor tendons of finger anomalies.
Follow this condition to be notified when news becomes available.
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Questions for your doctor
Bring these to your next appointment
- Q1.How severe is the tendon anomaly, and which fingers are affected?,Will my child need surgery, or can this be managed with therapy alone?,Is this condition isolated, or could it be part of a broader syndrome?,Should we see a geneticist for further evaluation?,What kind of therapy will help improve hand function?,What can we expect for long-term hand function and independence?,Are there any school or workplace accommodations we should consider?
Common questions about Extensor tendons of finger anomalies
What is Extensor tendons of finger anomalies?
Extensor tendons of finger anomalies is a rare congenital condition in which the tendons that straighten (extend) the fingers are not formed or arranged normally. These tendons run along the back of the hand and fingers, and when they develop abnormally before birth, it can affect how well a person can straighten or move their fingers. The condition falls under a broader group of congenital limb and skeletal malformations. People with this condition may notice difficulty fully extending one or more fingers, unusual finger postures, or limited hand function. The severity can vary widely — some
At what age does Extensor tendons of finger anomalies typically begin?
Typical onset of Extensor tendons of finger anomalies is neonatal. Age of onset can vary across affected individuals.