EEC syndrome and related disorders

Last reviewed

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ORPHA:98609
Who is this for?
Show terms as
2FDA treatments8Treatment centers2Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

Treatments

2 available

POTELIGEO

mogamulizumab· Kyowa Kirin Pharmaceutical Development Inc.

indicated for the treatment of adult patients with relapsed or refractory Sézary syndrome after at least one prior systemic therapy

Nplate

ROMIPLOSTIM· Amgen, Inc
Nplate is indicated to increase survival in adults and in pediatric patients (including term neonates) acutely exposed to myelosuppressive doses of radiation (Hematopoietic Syndrome of Acute Radiation

Nplate is indicated to increase survival in adults and in pediatric patients (including term neonates) acutely exposed to myelosuppressive doses of radiation (Hematopoietic Syndrome of Acute Radiation Syndrome [HS-ARS]).

No actively recruiting trials found for EEC syndrome and related disorders at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the EEC syndrome and related disorders community →

No specialists are currently listed for EEC syndrome and related disorders.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

2 resources
Nplate(ROMIPLOSTIM)Amgen, Inc

Neupogen

Amgen, Inc.

Neupogen Patient Support (Amgen Safety Net)

Patient Assistance
Manufacturer Program
Accepting applications

Travel Grants

No travel grants are currently matched to EEC syndrome and related disorders.

Search all travel grants →NORD Financial Assistance ↗

Community

Open EEC syndrome and related disordersForum →

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Latest news about EEC syndrome and related disorders

No recent news articles for EEC syndrome and related disorders.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about EEC syndrome and related disorders

What treatment and support options exist for EEC syndrome and related disorders?

2 patient support programs are currently tracked on UniteRare for EEC syndrome and related disorders. See the treatments and support programs sections for copay assistance, eligibility, and contact details.