Dural sinus malformation with arteriovenous shunt

Last reviewed

🖨 Print for my doctorAdvocacy Hub →
ORPHA:97339Q28.3
Who is this for?
Show terms as
1Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
Report missing data

Overview

Also known as:

Clinical phenotype terms— hover any for plain English:

Arteriovenous fistulaHP:0004947Pulsatile tinnitusHP:0008629Central nervous system cystHP:0030724Abnormal posterior cranial fossa morphologyHP:0000932PapilledemaHP:0001085Subarachnoid hemorrhageHP:0002138
Orphanet ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Dural sinus malformation with arteriovenous shunt.

View clinical trials →

No actively recruiting trials found for Dural sinus malformation with arteriovenous shunt at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Dural sinus malformation with arteriovenous shunt community →

Specialists

1 foundView all specialists →
MD
Markus Moehlenbruch, PD Dr.
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Dural sinus malformation with arteriovenous shunt.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Dural sinus malformation with arteriovenous shuntForum →

No community posts yet. Be the first to share your experience with Dural sinus malformation with arteriovenous shunt.

Start the conversation →

Latest news about Dural sinus malformation with arteriovenous shunt

No recent news articles for Dural sinus malformation with arteriovenous shunt.

Follow this condition to be notified when news becomes available.

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Dural sinus malformation with arteriovenous shunt

Which specialists treat Dural sinus malformation with arteriovenous shunt?

1 specialists and care centers treating Dural sinus malformation with arteriovenous shunt are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.