Double outlet right ventricle with subpulmonary ventricular septal defect

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ORPHA:99045Q20.1
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8Treatment centers1Financial resources

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
Oct 1992

Betapace: FDA approved

Treatment of life-threatening ventricular tachyarrhythmias

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Double outlet right ventricle with subpulmonary ventricular septal defect.

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No actively recruiting trials found for Double outlet right ventricle with subpulmonary ventricular septal defect at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Double outlet right ventricle with subpulmonary ventricular septal defect community →

No specialists are currently listed for Double outlet right ventricle with subpulmonary ventricular septal defect.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Financial Resources

1 resources

Betapace

Berlex Laboratories, Inc.

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copay card
copay assistancePatient Assistance
Accepting applications

Travel Grants

No travel grants are currently matched to Double outlet right ventricle with subpulmonary ventricular septal defect.

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Community

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Latest news about Double outlet right ventricle with subpulmonary ventricular septal defect

No recent news articles for Double outlet right ventricle with subpulmonary ventricular septal defect.

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Double outlet right ventricle with subpulmonary ventricular septal defect

What treatment and support options exist for Double outlet right ventricle with subpulmonary ventricular septal defect?

1 patient support program are currently tracked on UniteRare for Double outlet right ventricle with subpulmonary ventricular septal defect. See the treatments and support programs sections for copay assistance, eligibility, and contact details.