Cystic leukoencephalopathy without megalencephaly

Last reviewed

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ORPHA:85136OMIM:618235E75.2
Who is this for?
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4Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Cystic leukoencephalopathy without megalencephaly.

View clinical trials →

No actively recruiting trials found for Cystic leukoencephalopathy without megalencephaly at this time.

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Search ClinicalTrials.gov ↗Join the Cystic leukoencephalopathy without megalencephaly community →

Specialists

4 foundView all specialists →
SC
S Chowdhary
Specialist
1 Cystic leukoencephalopathy without megalencephaly publication
AA
A Alexander
Specialist
1 Cystic leukoencephalopathy without megalencephaly publication
ST
S Thangavel
Specialist
1 Cystic leukoencephalopathy without megalencephaly publication
AG
A Gopalakrishnan
OKLAHOMA CITY, OK
Specialist
1 Cystic leukoencephalopathy without megalencephaly publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Cystic leukoencephalopathy without megalencephaly.

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Community

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Latest news about Cystic leukoencephalopathy without megalencephaly

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Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Cystic leukoencephalopathy without megalencephaly

Which specialists treat Cystic leukoencephalopathy without megalencephaly?

4 specialists and care centers treating Cystic leukoencephalopathy without megalencephaly are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.