Cystic hygroma

Last reviewed

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ORPHA:79486OMIM:257350
Who is this for?
Show terms as
1Active trials20Specialists8Treatment centers

Where are you in your journey?

ℹ
UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Orphanet ↗OMIM ↗NORD ↗

FDA & Trial Timeline

2 events
Sep 2024A Trial of Targeted Therapies for Patients With Slow-Flow or Fast-Flow Vascular Malformations

Murdoch Childrens Research Institute — PHASE2

TrialRECRUITING
Nov 2023Alpelisib in Pediatric and Adult Patients With Lymphatic Malformations Associated With a PIK3CA Mutation.

Novartis Pharmaceuticals — PHASE2, PHASE3

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Cystic hygroma.

1 clinical trialare actively recruiting — trials can provide access to cutting-edge therapies.

View clinical trials →

Clinical Trials

1 recruitingView all trials with filters →
Phase 21 trial
A Trial of Targeted Therapies for Patients With Slow-Flow or Fast-Flow Vascular Malformations
Phase 2
Actively Recruiting
PI: Tony Penington, MBBS, FRACS. (Study Principal Investigator) · Sites: Parkville, Victoria; Parkville, Victoria · Age: 2–99 yrs
View on ClinicalTrials.gov ↗I'm interested →

Specialists

20 foundView all specialists →
JZ
Jianli Zheng
FLUSHING, NY
Specialist
1 Cystic hygroma publication
YF
Yadong Fu
Specialist
1 Cystic hygroma publication
ML
Min Li
Specialist
1 Cystic hygroma publication
JL
Jianbing Liu
Specialist
1 Cystic hygroma publication
NM
Niall James McInerney
Specialist
1 Cystic hygroma publication
NO
Nick O'Keeffe
Specialist
1 Cystic hygroma publication
MB
Maria Bazan
PASADENA, CA
Specialist
2 Cystic hygroma publications
MF
Millie A Ferrés
Specialist
2 Cystic hygroma publications
YO
Yinka Oyelese
Specialist
2 Cystic hygroma publications
TW
Tiantian Wang
WATSEKA, IL
Specialist
1 Cystic hygroma publication
HS
Huilin Sun
ELLENSBURG, WA
Specialist
1 Cystic hygroma publication
YG
Yongjuan Guan
Specialist
1 Cystic hygroma publication
FY
Fangfang Yang
NEWTON, MA
Specialist
1 Cystic hygroma publication
JW
Jing Wu
Specialist
1 Cystic hygroma publication
FY
Feifei Ying
Specialist
1 Cystic hygroma publication
SF
Stephen Luen, MBChB, FRACP.
Specialist
PI on 1 active trial
TF
Tony Penington, MBBS, FRACS.
Specialist
PI on 1 active trial
LF
Lydia Pathmanathan, MBBS, FRACP.
Specialist
PI on 1 active trial
GM
Gamal El-Tagy, MD
Specialist
PI on 1 active trial
IT
Imen Mehri Turki
Specialist
PI on 2 active trials

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center ↗

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center ↗

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program ↗

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site ↗

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site ↗

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site ↗

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine ↗

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program ↗

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Cystic hygroma.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Cystic hygroma

Disease timeline:

New recruiting trial: Alpelisib in Pediatric and Adult Patients With Lymphatic Malformations Associated With a PIK3CA Mutation.

A new clinical trial is recruiting patients for Cystic hygroma

New recruiting trial: A Trial of Targeted Therapies for Patients With Slow-Flow or Fast-Flow Vascular Malformations

A new clinical trial is recruiting patients for Cystic hygroma

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Cystic hygroma

Are there clinical trials for Cystic hygroma?

Yes — 1 recruiting clinical trial is currently listed for Cystic hygroma on UniteRare. See the clinical trials section on this page for phase, sponsor, and site details sourced from ClinicalTrials.gov.

Which specialists treat Cystic hygroma?

20 specialists and care centers treating Cystic hygroma are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.