Overview
Cowden Syndrome is treated with 2 medications in our database, including WELIREG, BELRAPZO. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Merck, Eagle. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Cowden Syndrome treatment below.
Also known as:
Clinical phenotype terms— hover any for plain English:
Autosomal dominant
Passed on from just one parent; each child has about a 50% chance of inheriting it
Variable
Can begin at different ages, from infancy through adulthood
FDA & Trial Timeline
1 eventBoston Children's Hospital
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
2 availableWELIREG
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: Not Publicly Available * RxBIN, PCN, and Group numbers: Not Publi
BELRAPZO
* Patient Copay Amount: Not Publicly Available * Maximum Annual Benefit Limit: Not Publicly Available * Core Eligibility Restrictions: For specific patient support program eligibility requirements, pl
Clinical Trials
View all trials with filters →No actively recruiting trials found for Cowden syndrome at this time.
New trials open frequently. Follow this disease to get notified.
Rare Disease Specialist
Rare Disease Specialist
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
6 grantsThe Merck Co-pay Assistance Program
Merck
Eligible patients must be U.S. residents with private insurance covering KEYTRUDA for an FDA-approved indication. The program excludes individuals with government-funded insurance and requires patients to pay the first $25 of their co-pay per administration.
Merck Patient Assistance Program
Merck
The Merck Patient Assistance Programs provide access to a wide range of Merck medicines and vaccines for patients who meet specific criteria. The provided text lists eligible medications but does not specify exact income thresholds or travel requirements.
The Merck Access Program
Merck
The program is available to U.S. residents diagnosed with Pulmonary Arterial Hypertension (Group 1) who meet clinical safety requirements including a minimum platelet count. Patients must undergo a benefits investigation and provide authorization for the disclosure of health information to determine eligibility for financial assistance or support services.
WELIREG Treatment Resources
Merck
Eligibility is for adults with advanced clear cell renal cell carcinoma (RCC) who have previously been treated with a PD-1/PD-L1 inhibitor and a VEGF-TKI. The program provides links to third-party resources that may assist with daily challenges such as transportation, housing, and food.
Community
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Start the conversation →Latest news about Cowden syndrome
Disease timeline:
New recruiting trial: Natural History Study of Individuals With Autism and Germline Heterozygous PTEN Mutations
A new clinical trial is recruiting patients for Cowden syndrome
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Cowden syndrome
What is Cowden syndrome?
Cowden Syndrome is treated with 2 medications in our database, including WELIREG, BELRAPZO. 2 of these have manufacturer assistance programs available to help reduce out-of-pocket costs. Medications are manufactured by Merck, Eagle. Patients and caregivers can find copay cards, patient assistance programs, and travel grants for Cowden Syndrome treatment below.
How is Cowden syndrome inherited?
Cowden syndrome follows a autosomal dominant inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.
Which specialists treat Cowden syndrome?
2 specialists and care centers treating Cowden syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.
What treatment and support options exist for Cowden syndrome?
2 FDA-approved treatments are currently tracked on UniteRare for Cowden syndrome. See the treatments and support programs sections for copay assistance, eligibility, and contact details.