Conjoined twins

Last reviewed

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ORPHA:647916Q89.4
Who is this for?
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6Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

7 events
Mar 2026VONJO: New indication approved
FDAcompleted
Oct 2025VONJO: New indication approved
FDAcompleted
Aug 2025VONJO: New indication approved
FDAcompleted
Nov 2024VONJO: New indication approved
FDAcompleted
Sep 2024The Importance of Physiotherapy After Separation Surgery in Pygopagus Conjoined Twins

Acıbadem Atunizade Hospital — NA

TrialNOT YET RECRUITING
Aug 2023VONJO: New indication approved
FDAcompleted
Feb 2022VONJO: FDA approved
FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Conjoined twins.

View clinical trials →

No actively recruiting trials found for Conjoined twins at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Conjoined twins community →

Specialists

6 foundView all specialists →
HM
Hala S Abdelghaffar, MD
Specialist
PI on 1 active trial
FM
fatih dr akkuş, md
Specialist
PI on 1 active trial
BC
Benoit Chauveau
Specialist
PI on 1 active trial
ŞM
şükran DR doğru, md
Specialist
PI on 1 active trial
OP
Ozlem Dulger, Assist Prof
Specialist
PI on 1 active trial
GE
Gökçen EROL
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Conjoined twins.

Search all travel grants →NORD Financial Assistance ↗

Community

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Latest news about Conjoined twins

1 articles
NewsFDA
FDA Approves VONJO
VONJO (PACRITINIB CITRATE) received FDA approval.
See all news about Conjoined twins

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Conjoined twins

Which specialists treat Conjoined twins?

6 specialists and care centers treating Conjoined twins are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.