Congenital vitamin K-dependent coagulation factors deficiency

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Overview

Congenital vitamin K-dependent coagulation factors deficiency (VKCFD), also known as combined deficiency of vitamin K-dependent clotting factors or familial multiple coagulation factor deficiency, is a rare inherited bleeding disorder characterized by reduced activity of all vitamin K-dependent coagulation factors (factors II, VII, IX, and X) as well as the natural anticoagulant proteins C, S, and Z. The condition results from defects in the vitamin K cycle, specifically mutations in the genes encoding either gamma-glutamyl carboxylase (GGCX, causing VKCFD type 1) or vitamin K epoxide reductase complex subunit 1 (VKORC1, causing VKCFD type 2). These enzymes are essential for the post-translational modification (gamma-carboxylation) of vitamin K-dependent proteins, which is required for their proper function in the coagulation cascade. The disease primarily affects the blood coagulation system but can also impact bone metabolism, since vitamin K-dependent proteins such as osteocalcin play a role in skeletal development. Clinical manifestations vary widely in severity and may present from birth or early infancy. Symptoms include easy bruising, mucocutaneous bleeding, epistaxis, gastrointestinal hemorrhage, umbilical cord bleeding, intracranial hemorrhage in severe cases, and prolonged bleeding after surgery or trauma. Some patients also exhibit skeletal abnormalities such as nasal hypoplasia, stippled epiphyses, and short stature, particularly in VKCFD type 1, reflecting impaired carboxylation of bone-related proteins. Treatment centers on oral or parenteral vitamin K supplementation, which can partially or fully correct the coagulation defect in many patients, particularly those with milder forms. The response to vitamin K therapy varies depending on the specific mutation and its effect on enzyme function. In cases of acute or severe bleeding, fresh frozen plasma or prothrombin complex concentrates may be required. Lifelong monitoring and management by a hematologist experienced in rare bleeding disorders is recommended.

Inheritance

Autosomal recessive

Passed on when both parents carry the same gene change; often skips generations

Age of Onset

Neonatal

Begins at or shortly after birth (first 4 weeks)

Orphanet ↗NORD ↗

FDA & Trial Timeline

1 event
May 2018

ANDEXXA: FDA approved

Coagulation factor Xa (recombinant), inactivated-zhzo is indicated for patients treated with rivaroxaban and apixaban, when reversal of anticoagulation is needed due to life-threatening or uncontrolled bleeding

FDAcompleted

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

1 available

TOBRADEX ST

TOBRAMYCIN / DEXAMETHASONE· Harrow Eye, LLC

They are also indicated in chronic anterior uveitis and corneal injury from chemical, radiation or thermal burns, or penetration of foreign bodies.

No actively recruiting trials found for Congenital vitamin K-dependent coagulation factors deficiency at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Congenital vitamin K-dependent coagulation factors deficiency community →

No specialists are currently listed for Congenital vitamin K-dependent coagulation factors deficiency.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital vitamin K-dependent coagulation factors deficiency.

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Latest news about Congenital vitamin K-dependent coagulation factors deficiency

1 articles
NewsFDA
FDA Approves TOBRADEX ST
TOBRADEX ST (DEXAMETHASONE) received FDA approval.
See all news about Congenital vitamin K-dependent coagulation factors deficiency

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Common questions about Congenital vitamin K-dependent coagulation factors deficiency

What is Congenital vitamin K-dependent coagulation factors deficiency?

Congenital vitamin K-dependent coagulation factors deficiency (VKCFD), also known as combined deficiency of vitamin K-dependent clotting factors or familial multiple coagulation factor deficiency, is a rare inherited bleeding disorder characterized by reduced activity of all vitamin K-dependent coagulation factors (factors II, VII, IX, and X) as well as the natural anticoagulant proteins C, S, and Z. The condition results from defects in the vitamin K cycle, specifically mutations in the genes encoding either gamma-glutamyl carboxylase (GGCX, causing VKCFD type 1) or vitamin K epoxide reductas

How is Congenital vitamin K-dependent coagulation factors deficiency inherited?

Congenital vitamin K-dependent coagulation factors deficiency follows a autosomal recessive inheritance pattern. Genetic counseling can help families understand recurrence risk and testing options.

At what age does Congenital vitamin K-dependent coagulation factors deficiency typically begin?

Typical onset of Congenital vitamin K-dependent coagulation factors deficiency is neonatal. Age of onset can vary across affected individuals.