Overview
Also known as:
Clinical phenotype terms— hover any for plain English:
FDA & Trial Timeline
9 eventsIndiana University — NA
Sheffield Hallam University
Massachusetts Eye and Ear Infirmary
Icahn School of Medicine at Mount Sinai — NA
PCK Marine Hospital in Gdynia — NA
Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.
Treatments
No FDA-approved treatments are currently listed for Congenital tufting enteropathy.
View clinical trials →Clinical Trials
View all trials with filters →No actively recruiting trials found for Congenital tufting enteropathy at this time.
New trials open frequently. Follow this disease to get notified.
Treatment Centers
8 centersBaylor College of Medicine Rare Disease Center ↗
Baylor College of Medicine
📍 Houston, TX
🏥 NORDStanford Medicine Rare Disease Center ↗
Stanford Medicine
📍 Stanford, CA
🔬 UDNNIH Clinical Center Undiagnosed Diseases Program ↗
National Institutes of Health
📍 Bethesda, MD
🔬 UDNUCLA UDN Clinical Site ↗
UCLA Health
📍 Los Angeles, CA
🔬 UDNBaylor College of Medicine UDN Clinical Site ↗
Baylor College of Medicine
📍 Houston, TX
🔬 UDNHarvard/MGH UDN Clinical Site ↗
Massachusetts General Hospital
📍 Boston, MA
🏥 NORDMayo Clinic Center for Individualized Medicine ↗
Mayo Clinic
📍 Rochester, MN
👤 Mayo Clinic Center for Individualized Medicine
🏥 NORDUCLA Rare Disease Day Program ↗
UCLA Health
📍 Los Angeles, CA
Travel Grants
No travel grants are currently matched to Congenital tufting enteropathy.
Community
No community posts yet. Be the first to share your experience with Congenital tufting enteropathy.
Start the conversation →Latest news about Congenital tufting enteropathy
Disease timeline:
New recruiting trial: Neural Correlates During Alcohol Intoxication
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: LHC-CIDI-5 in Hong Kong
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Inflammatory Challenge in Human Aggression.
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Effect of Nitrous Oxide on Aggression.
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Observing 3-5 Year Old Children's Use of Interactive Electronic Devices (IED) in the Family Home to Understand the Context These Devices Are Being Used in, Exploring Whether Socioeconomic Factors or Parent's Own Use of Such Devices Influence the Child's IED Usage.
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Anal Cancer and/or Precancer Screening: Performance Analysis of the BD Onclarity™ HPV Assay on Anal Specimens
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Determining the Frequency of Occurrence and Defining the Most Appropriate Screening Test for Anal Intraepithelial Neoplasia (AIN) in Patients With Human Papillomavirus (HPV) Related Gynecological Diseases.
A new clinical trial is recruiting patients for Congenital tufting enteropathy
New recruiting trial: Deciphering Mechanisms Underlying Cancer Immunogenicity
A new clinical trial is recruiting patients for Congenital tufting enteropathy
Caregiver Resources
NORD Caregiver Resources
Support, advocacy, and financial assistance for caregivers of rare disease patients.
Mental Health Support
Rare disease caregiving can be isolating. Connect with counseling and peer support.
Family & Caregiver Grants
Financial assistance programs specifically for caregivers of rare disease patients.
Social Security Disability
Learn how rare disease patients may qualify for SSDI/SSI benefits.
Common questions about Congenital tufting enteropathy
Which specialists treat Congenital tufting enteropathy?
3 specialists and care centers treating Congenital tufting enteropathy are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.