Congenital total pulmonary venous return anomaly

Last reviewed

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ORPHA:99125OMIM:106700Q26.2
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1Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Clinical phenotype terms— hover any for plain English:

Atrial situs ambiguousHP:0011539Supracardiac total anomalous pulmonary venous connectionHP:0011719Paroxysmal dyspneaHP:0012763DextrocardiaHP:0001651Double outlet right ventricleHP:0001719Single ventricleHP:0001750
Orphanet ↗OMIM ↗NORD ↗

Treatments

No FDA-approved treatments are currently listed for Congenital total pulmonary venous return anomaly.

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No actively recruiting trials found for Congenital total pulmonary venous return anomaly at this time.

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Specialists

1 foundView all specialists →
NM
Nathaniel Sznycer-Taub, MD
ANN ARBOR, MI
Specialist
PI on 1 active trial

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital total pulmonary venous return anomaly.

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Community

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Latest news about Congenital total pulmonary venous return anomaly

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Caregiver Resources

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Common questions about Congenital total pulmonary venous return anomaly

Which specialists treat Congenital total pulmonary venous return anomaly?

1 specialists and care centers treating Congenital total pulmonary venous return anomaly are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.