Congenital high airway obstruction syndrome

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ORPHA:700286J98.8
Who is this for?
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15Specialists8Treatment centers

Where are you in your journey?

UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

3 events
Nov 2024Peer Support Workers Feasibility Study

University of British Columbia — NA

TrialRECRUITING
Jul 2020The Family Stress Study - Chronic Stress and Child Adiposity: Testing a Bio-behavioural Model

University of Guelph

TrialACTIVE NOT RECRUITING
Sep 2017SQUED™ Series 28.1 Home-use and Treatment of Autowave Reverberator of Autism

American Federation of Medical Synergetics

TrialRECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Congenital high airway obstruction syndrome.

View clinical trials →

No actively recruiting trials found for Congenital high airway obstruction syndrome at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Congenital high airway obstruction syndrome community →

Specialists

15 foundView all specialists →
OA
O J Arthurs
Specialist
1 Congenital high airway obstruction syndrome publication
NM
Nada Mufti
Specialist
1 Congenital high airway obstruction syndrome publication
RS
Rana Sabra
Specialist
1 Congenital high airway obstruction syndrome publication
CG
Ciprian P Gheorghe
LOMA LINDA, CA
Specialist
1 Congenital high airway obstruction syndrome publication
JM
Jinnen Masri
Specialist
1 Congenital high airway obstruction syndrome publication
RC
Ramen H Chmait
PASADENA, CA
Specialist
1 Congenital high airway obstruction syndrome publication
SS
S C Shelmerdine
Specialist
1 Congenital high airway obstruction syndrome publication
MA
M T Ashworth
Specialist
1 Congenital high airway obstruction syndrome publication
JC
J Carmichael
Specialist
1 Congenital high airway obstruction syndrome publication
PP
Premal Patel
Specialist
1 Congenital high airway obstruction syndrome publication
MA
Michael Aertsen
Specialist
1 Congenital high airway obstruction syndrome publication
TG
Trevor Gaunt
Specialist
1 Congenital high airway obstruction syndrome publication
ME
Michael Ebner
PIEDMONT, SC
Specialist
1 Congenital high airway obstruction syndrome publication
PH
Paul D Humphries
MINOOKA, IL
Specialist
1 Congenital high airway obstruction syndrome publication
MM
Martha A Monson
MURRAY, UT
Specialist
1 Congenital high airway obstruction syndrome publication

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital high airway obstruction syndrome.

Search all travel grants →NORD Financial Assistance ↗

Community

Open Congenital high airway obstruction syndromeForum →

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Latest news about Congenital high airway obstruction syndrome

Disease timeline:

New recruiting trial: Peer Support Workers Feasibility Study

A new clinical trial is recruiting patients for Congenital high airway obstruction syndrome

New recruiting trial: SQUED™ Series 28.1 Home-use and Treatment of Autowave Reverberator of Autism

A new clinical trial is recruiting patients for Congenital high airway obstruction syndrome

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.

Common questions about Congenital high airway obstruction syndrome

Which specialists treat Congenital high airway obstruction syndrome?

15 specialists and care centers treating Congenital high airway obstruction syndrome are listed on UniteRare, sourced from ClinicalTrials.gov principal investigators, published research, and the NPPES NPI registry.