Congenital anomaly of the great arteries

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ORPHA:98724
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8Treatment centers

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UniteRare data is sourced from FDA.gov, ClinicalTrials.gov, Orphanet, OMIM, and NORD.
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Overview

Also known as:

Orphanet ↗NORD ↗

FDA & Trial Timeline

6 events
Jun 2025Prenatal Maternal Mental Health and Neurodevelopment in Congenital Heart Disease

Institut National de la Santé Et de la Recherche Médicale, France

TrialRECRUITING
Jan 2023Adult Congenital Heart Disease International EValuation of the Effectiveness of SGLT2i Registry

Leiden University Medical Center

TrialRECRUITING
Nov 2022Cardiac Resynchronization Therapy in Adult Congenital Heart Disease With Systemic Right Ventricle: RIGHT-CRT

Assistance Publique - Hôpitaux de Paris — NA

TrialRECRUITING
Sep 2022Genetics of Ventriculo-arterial Discordance

Nantes University Hospital — NA

TrialACTIVE NOT RECRUITING
Oct 2019Comprehensive Long-term Follow up of Adults With Arterial Switch Operation

University of Zurich

TrialACTIVE NOT RECRUITING
Oct 2015Fibrosis, Valvular and Ventricular Function in Patients With TGA

Universitaire Ziekenhuizen KU Leuven

TrialACTIVE NOT RECRUITING

Data sourced from FDA regulatory filings and ClinicalTrials.gov. Updated periodically.

Treatments

No FDA-approved treatments are currently listed for Congenital anomaly of the great arteries.

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No actively recruiting trials found for Congenital anomaly of the great arteries at this time.

New trials open frequently. Follow this disease to get notified.

Search ClinicalTrials.gov ↗Join the Congenital anomaly of the great arteries community →

No specialists are currently listed for Congenital anomaly of the great arteries.

View NORD Rare Disease Centers ↗Undiagnosed Disease Network ↗

Treatment Centers

8 centers
🏥 NORD

Baylor College of Medicine Rare Disease Center

Baylor College of Medicine

📍 Houston, TX

🏥 NORD

Stanford Medicine Rare Disease Center

Stanford Medicine

📍 Stanford, CA

🔬 UDN

NIH Clinical Center Undiagnosed Diseases Program

National Institutes of Health

📍 Bethesda, MD

🔬 UDN

UCLA UDN Clinical Site

UCLA Health

📍 Los Angeles, CA

🔬 UDN

Baylor College of Medicine UDN Clinical Site

Baylor College of Medicine

📍 Houston, TX

🔬 UDN

Harvard/MGH UDN Clinical Site

Massachusetts General Hospital

📍 Boston, MA

🏥 NORD

Mayo Clinic Center for Individualized Medicine

Mayo Clinic

📍 Rochester, MN

👤 Mayo Clinic Center for Individualized Medicine

🏥 NORD

UCLA Rare Disease Day Program

UCLA Health

📍 Los Angeles, CA

Travel Grants

No travel grants are currently matched to Congenital anomaly of the great arteries.

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Community

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Latest news about Congenital anomaly of the great arteries

Disease timeline:

New recruiting trial: Prenatal Maternal Mental Health and Neurodevelopment in Congenital Heart Disease

A new clinical trial is recruiting patients for Congenital anomaly of the great arteries

New recruiting trial: Cardiac Resynchronization Therapy in Adult Congenital Heart Disease With Systemic Right Ventricle: RIGHT-CRT

A new clinical trial is recruiting patients for Congenital anomaly of the great arteries

New recruiting trial: Adult Congenital Heart Disease International EValuation of the Effectiveness of SGLT2i Registry

A new clinical trial is recruiting patients for Congenital anomaly of the great arteries

Caregiver Resources

NORD Caregiver Resources

Support, advocacy, and financial assistance for caregivers of rare disease patients.

Mental Health Support

Rare disease caregiving can be isolating. Connect with counseling and peer support.

Family & Caregiver Grants

Financial assistance programs specifically for caregivers of rare disease patients.

Social Security Disability

Learn how rare disease patients may qualify for SSDI/SSI benefits.